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Never thirsty?

Messages
13,774
Edit 6 years later: wow - I handed out advice with undue confidence back then. Ignore this post and do whatever you find works for you.

Stay hydrated people! - For POTS type stuff it's particularly important, but most people should try to drink more than they naturally feel they want. We're lucky enough to have access to all this good, clean water, so lets make the most of it!

I definitely don't have enough of a natural desire for water. My partner has been pushing me to drink more for years though, so I'm a bit more in the habit now. GL all.
 
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August59

Daughters High School Graduation
Messages
1,617
Location
Upstate SC, USA
The act of "drinking" just doesn't seem to be as natural or involuntary as it used to be. I drink a good bit, but over the last year I get much more thirsty than I used to.
 

Boule de feu

Senior Member
Messages
1,118
Location
Ottawa, Canada
Drinking water makes my nausea worse... =-(
Not drinking water makes my dizziness worse... =-(

The days I choose to be sick to my stomach,
I can go for walks! Go figure! LOL
 

Mya Symons

Mya Symons
Messages
1,029
Location
Washington
I wonder if this has anything to do with heart problems (circulation) and retaining water? I sip water throughout the day because of a dry throat and mouth, but I try not to drink alot or I feel bloated and I am up all night due to irritable bladder. I also notice that on some days I do not urinate alot (as in amount, not times I go) and then a few days later it seems to all come out. I think it just all stays in there for days. This can't be good for a person's heart. I remember my mother having this problem a few years before congestive heart failure.
 

helen41

Senior Member
Messages
567
Location
Sleepy Hollow Canada
I'm the opposite. I have water beside me all the time since I got sick. During the day I sip, and at night I always have water bottles beside the bed and I guesstimate I sit up and drink at least 10 times, because I'm hot and my mouth feels so dry
 
Messages
2
Yes, I've had that symptom of never being thirsty. With all the other symptoms I've never tagged it to CFS. But will now and make an attempt to drink more water.
 

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
I used to have constant thirst but nowdays I have an issue of no thirst and can actually go days without drinking so I do need to monitor myself and make myself drink. I think its some issue to do with the autonomic nervous system and some of us have lost our bodies natural messages which tell us when we need to drink.
 

justy

Donate Advocate Demonstrate
Messages
5,524
Location
U.K
Hi Leaves, not something ive thought about much before but i dont drink much and i never ever drink water especially if its cold. I cant stand cold drinks and will drink herbal or decaf tea throughout the day but i never feel like i need a glass of water.Ive always been like this and as a child whenever i drank cold water i used to feel like i was drowning. Strangely i still pee a lot and my pee is always light straw coloured so i know im not dehydrated. if i drank more i would never be of the loo.

Re irritable bladder, im not sure what it is but often i lay in bed and need a pee, i get up and go then as soon as i lay down i need to go again and so on. the other night it was 5 times in the first hour of being in bed and every time it was more than just a drop! is that similar?
 

Old Salt

Rowing the boat
Messages
70
Location
S/W Pa.
Hi Leaves, not something ive thought about much before but i dont drink much and i never ever drink water especially if its cold. I cant stand cold drinks and will drink herbal or decaf tea throughout the day but i never feel like i need a glass of water.Ive always been like this and as a child whenever i drank cold water i used to feel like i was drowning. Strangely i still pee a lot and my pee is always light straw coloured so i know im not dehydrated. if i drank more i would never be of the loo.

Re irritable bladder, im not sure what it is but often i lay in bed and need a pee, i get up and go then as soon as i lay down i need to go again and so on. the other night it was 5 times in the first hour of being in bed and every time it was more than just a drop! is that similar?
I don't get thirsty either but I drink at least a couple of pints of bottled spring water a day. Don't pee much during the day but lots at night. Better to pee a lot and replace the minerals, especially magnesium. we're all low on magnesium. Check your pulse, if it isn't steady, more minerals and lots of fish oil. Avoid a stroke!
 

August59

Daughters High School Graduation
Messages
1,617
Location
Upstate SC, USA
I just have a severe dry mouth and have had it since I became sick, but it has been made much, much worse from radiation therapy for my tonsil and lymph node cancer. The radiation destroyed one of my salivary glands, but the doctor told me it could take a year or more before I recover from all of the radiation side effects.
 
Messages
2,562
Location
US
I get thirsty but drinking means peeing more. I hate having to pee often.

Mostly I get thirsty if I had salt, something sweet, or dried (dehydrated) fruit.
 

bspg

Plant Queen
Messages
547
Location
USA
I'm never thirsty either, even though I only drink ~60oz (2 liters) of liquid a day. I have to force myself to drink any more than that.

Strangely, I just had my vasopressin tested and it came back undetectable?? My doctor wants me to start desmopressin but I'm not convinced it's a good idea. My electrolytes always test fine and I'm never thirsty. I also don't feel like I need to pee a lot.
 
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Messages
2,391
Location
UK
Hi Leaves, not something ive thought about much before but i dont drink much and i never ever drink water especially if its cold. I cant stand cold drinks and will drink herbal or decaf tea throughout the day but i never feel like i need a glass of water.Ive always been like this and as a child whenever i drank cold water i used to feel like i was drowning. Strangely i still pee a lot and my pee is always light straw coloured so i know im not dehydrated. if i drank more i would never be of the loo.

Re irritable bladder, im not sure what it is but often i lay in bed and need a pee, i get up and go then as soon as i lay down i need to go again and so on. the other night it was 5 times in the first hour of being in bed and every time it was more than just a drop! is that similar?
Drink lots more I think, preferably water! Long time ago when my wife and I first met, we realised she doesn't seem to get thirst signals like she should. For a long time now she consciously makes herself drink. I'm not a medic, but I believe the pee urge is partly amplified by its acidity, so if insufficiently diluted can make you think you need to keep going. But like I say, it's only what others have told us, I'm not qualified myself to know.
 

Gingergrrl

Senior Member
Messages
16,171
Interesting thread and for most of this illness I was also in the "never thirsty" group which seemed to be uncommon from most people on PR. I have POTS and had many doctors tell me to do "fluid loading" but I just was not physically capable of it.

There were days back then that I struggled to drink 2-3 cups of water or fluid. In retrospect I think part of this was to protect me from "third spacing" which can be common in MCAS. My MCAS specialist disagrees with the fluid loading concept for POTS and said if I can drink 6-8 cups per day that is a perfect amount for me. On most days I can do this but it is still a struggle (not sure why)?!
 
Messages
60
Long time ago when I was pretty active, I also drank small amounts of fluid. I would say nothing between normal meals. Now the situation has changed. Although I am not thirsty, water with electrolytes gives me more energy, definitely.