I don't think this has been posted elsewhere on PR.
http://www.meaction.net/2017/04/25/...howcase-their-work-to-raise-awareness-for-me/
Anil van der Zee, 38, is a former professional ballet dancer in Amsterdam. In 2007, he contracted a viral infection, Cytomegalovirus, and never fully recovered. A few years later he was diagnosed with Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS).
He describes his transition from being a strong, vibrant dancer to a man hidden in the darkness, unable to handle any exertion, isolated from the world for more a year, forced to live in the bathroom and closet because the stimulation from living in an old house was too much for him. And yet, since ME is not recognized as a biomedical illness in the Netherlands, Anil was unable to receive any assistance from the Dutch government. It is difficult for Anil to get down the stairs now, and he is largely homebound by the illness.
Creating art is what makes Anil feel alive, and, since he can’t create “movement” any more with his own body, he has reached out to his friends who are dancers, choreographers, singers, pianists, architects, cartoonists, writers, photographers, filmmakers, DJ’s to create a piece of art to raise awareness for ME for the month of May. He plans to share the art he has received on May 1st with the hashtags #undauerME, #art2cureME and #millionsmissing.
He is also inviting anyone with ME and allies to participate in the project, and to share their expressions of art on May 1st with the hashtags #undauerME, #art2cureME and #millionsmissing.
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http://www.meaction.net/2017/04/25/...howcase-their-work-to-raise-awareness-for-me/