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Hi, as a sufferer of severe CFS, I'd like to get some understanding of this symptom that has flared up every few years for several months at a time and is very debilitating. The pain is very sharp and stabbing, and triggered by very slight movements of neck and shoulders which are completely unpredictable, so I go around yelling OW! every time I move my neck and shoulders certain ways or push down on things with my arms in certain ways.
Even very small movements like rotating my right shoulder a bit forward will send a shooting pain through my left clavicle and neck area. Sometimes it's more on the right side. So it's hard to pinpoint the origin, and I think that would suggest that it's not just a typical structural issue..? The pain mostly goes away when I reverse the offending movement, although a soreness remains. Even just holding a coffee mug, I can feel the pain in my neck/sternum/collarbone area, sometimes just a painful strain and other times a more sudden and sharper pain, but it definitely feels like nerve pain.
It's nearly impossible to find any sleep position that doesn't trigger it, and then shifting position in bed by pressing down with a hand or arm will trigger the pain anywhere in the neck/sternum/clavicle area, unpredictably. In the past I've gone for months sleeping on the couch all propped up on my back, barely moving once I found a pain-free position. I'm hoping to prevent the current flareup from progressing that far.
I'm looking forward to a phone consult with Dr. Chia in the near future, after I get the necessary tests and paperwork together. I certainly plan to discuss this with him. But it may take a couple of months to get the lab results in and a consult appointment. I need to do more research and see if there's anything I could be doing in the meantime. I bought Equilibrant but am not sure about starting it before talking to Dr. Chia.
I just got finished working with a neurologist for migraines, and exhausted all the possible pain meds, having intolerable reactions to everything (even Gabapentin) except occasional Imitrex. So my options for pain meds are pretty much limited to small, infrequent doses of Ibuprofen and Acetaminophen, which do help somewhat when I take them, but I can't take them around the clock. I want to get to the bottom of this, but I'm all in favor of managing pain in the meantime!
Thanks for any thoughts on this.
Even very small movements like rotating my right shoulder a bit forward will send a shooting pain through my left clavicle and neck area. Sometimes it's more on the right side. So it's hard to pinpoint the origin, and I think that would suggest that it's not just a typical structural issue..? The pain mostly goes away when I reverse the offending movement, although a soreness remains. Even just holding a coffee mug, I can feel the pain in my neck/sternum/collarbone area, sometimes just a painful strain and other times a more sudden and sharper pain, but it definitely feels like nerve pain.
It's nearly impossible to find any sleep position that doesn't trigger it, and then shifting position in bed by pressing down with a hand or arm will trigger the pain anywhere in the neck/sternum/clavicle area, unpredictably. In the past I've gone for months sleeping on the couch all propped up on my back, barely moving once I found a pain-free position. I'm hoping to prevent the current flareup from progressing that far.
I'm looking forward to a phone consult with Dr. Chia in the near future, after I get the necessary tests and paperwork together. I certainly plan to discuss this with him. But it may take a couple of months to get the lab results in and a consult appointment. I need to do more research and see if there's anything I could be doing in the meantime. I bought Equilibrant but am not sure about starting it before talking to Dr. Chia.
I just got finished working with a neurologist for migraines, and exhausted all the possible pain meds, having intolerable reactions to everything (even Gabapentin) except occasional Imitrex. So my options for pain meds are pretty much limited to small, infrequent doses of Ibuprofen and Acetaminophen, which do help somewhat when I take them, but I can't take them around the clock. I want to get to the bottom of this, but I'm all in favor of managing pain in the meantime!
Thanks for any thoughts on this.