Nasopharyngeal Symptoms

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As I described in my introduction, a big part of my experience with ME/CFS seems to revolve around my nasopharynx area. When I trigger a PEM episode, the first thing I notice almost immediately after activity is an irritated/inflamed/tingling sensation in my nasopharynx, and over the course of the next few hours the inflammation seems to diffuse across my whole body and I become achy, fatigued, etc.

It also seems like this area is very sensitive. I get dry very easily from talking and have to constantly drink water, and if my throat gets too dry it tends to trigger a crash. I’ve noticed allergy meds and sprays dry that area out and have caused some diffuse physical symptoms after that. I tried Xlear nasal spray for several days and started feeling much worse, which makes me really curious to understand if that was a good thing and I was fighting some sort of infection there, or if it’s a bad idea to stimulate that area.

I find myself frequently reaching for spicy foods, hot drinks etc to try to soothe the area. It’s not congested, just very irritated and if I were to try to locate the fatigue in one place in my body, it would be there.

I’m curious if this feeling is prevalent for other people with ME/CFS and if anyone has had any luck with sprays or other things to try to soothe it. I keep thinking that given its connection to my fatigue, finding something that clears up that area could have some major effects on my overall well-being. Thanks in advance!
 
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Thanks, yes I have read that thread! Wish there were a place in the US to try it. I don’t think I’d feel comfortable trying to do it myself. I wonder if anyone’s had luck taking to an ENT about it? I’ve seen one during my workup but he didn’t find anything noteworthy.
 

hapl808

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I feel the same. If I were in Japan I might want to try it, but I'd like to at least talk to some people who have had it done. I'm curious if they had long term ME/CFS diagnoses and symptoms, or more recent cases that might have resolved on their own. Hard to know if there were too many confounding factors.
 

Hip

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There's that doctor in Japan who focuses on lighting abrading that area or something? I can find the link if you haven't already seen it.
Yes, that's Dr Osamu Hotta in Japan, this is the thread. He just rubs a cotton swab dipped in a zinc chloride solution on the nasopharynx to treat patients. It's very straightforward, and it might be possible to find a doctor willing to try this.


Dr Markov believes that ME/CFS is caused by a bacterial dysbiosis either in the kidneys, and/or the nasopharynx. He uses antibacterial vaccines to target these areas, and claims his vaccine treatment is able to fully cure 93% of ME/CFS patients. Dr Markov's theory and treatment of ME/CFS is detailed in the first post of this thread.



I tried Xlear nasal spray for several days and started feeling much worse, which makes me really curious to understand if that was a good thing and I was fighting some sort of infection there, or if it’s a bad idea to stimulate that area.
I had a similar experience using an anti-biofilm nasal spray, which I detail in this post. I may be that the bacterial die-off is exacerbating symptoms.
 
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It also seems like this area is very sensitive. I get dry very easily from talking and have to constantly drink water, and if my throat gets too dry it tends to trigger a crash. I’ve noticed allergy meds and sprays dry that area out and have caused some diffuse physical symptoms after that.
yes: frequently and much of the time....dry mostly. Throat, tongue, sinus. The thought of "assaulting" my nasal pharynx is a no go in my book. I am so far refusing any COVID tests, shoving things into my sinuses.

I tend to want to drink very cold things...because my tongue and throat are so messed up.

(they got the tonsils and adenoids already)