My Tomorrows - What is this?

[Keela Too]

This link came up in Facebook.

I've never heard of this group before. They say they want you to answer questions before going further into the site... Anyone done this? Or know anything about this organisation?

Seems a bit ... erm....

http://eap.mytomorrows.com/chronic-fatigue-syndrome-treatment/

 

[MikeJackmin]

More info here:

https://mytomorrows.com/en/faq/

 

[Keela Too]

Thanks I missed that bit. Interesting. Wonder what work they are doing for ME and/or cfs

 

[sarah darwins]

Their own Media section links to a number of articles which shed some light, including these:

Amid 'Right To Try' Debate, myTomorrows Raises €4.5M To Give Patients Access To Development-Stage Drugs (TechCrunch)

A New Dallas Buyers Club: A Startup Helps Sick And Dying Patients Get Experimental Drugs (FastCompany)

 

[sarah darwins]

They currently list one early-access program under ME/CFS, which is for Rintatolimod [ampligen, yes?]

https://mytomorrows.com/en/conditions/495/chronic-fatigue-syndrome/treatments/page/1/

 

[CFS_for_19_years]

Earlier post about MyTomorrows here:
http://forums.phoenixrising.me/inde...ram-for-ampligen-in-europe.39204/#post-628167

 

[Keela Too]

Earlier post about MyTomorrows here:
http://forums.phoenixrising.me/inde...ram-for-ampligen-in-europe.39204/#post-628167

Thanks... looks like it might be good then. It came up as a promoted post on Facebook, so I was cautious.