My nose is pinched shut inside. Is this sinusitis?

Messages
45
Likes
57
Location
North-west England
(Caution: descriptions of snot await)

Two and a half years ago I was exhausted after a shopping trip so collapsed and slept for a few hours. When I woke up my nasal mucosa had ceased to work. They have never worked properly since then.

My nose is completely dry inside almost all the time. When I eat a curry a lot of very thin liquid snot gushes out but as soon as I've finished my nose dries up again. My sense of smell has been quite significantly affected. Doctors who have shone a light up it have grudgingly conceded, "It's very inflamed inside." So far they've prescribed ephedrine, two types of steroids and saline spray. Nothing has had any effect except that after taking steroids + saline I have noticed blood on the tissue after wiping my nose.

I had the initial blood tests for Sjögren's done (because genitalia are dry, plus mouth and eyes to some extent) but they came back normal, though my GPs are still investigating.

I can't breathe properly because my nose feels as if it is pinched shut on the inside with a clothespeg (clothespin). One nostril hisses like an aerosol can, the other groans like a vacuum cleaner and neither admits very much air. (This is called nasal congestion, apparently.) I have been researching this on the web and think it might be sinusitis, but it has been going on for years now and I never get infections (with pus discharge/swelling/pain) in that area, and the Internet keeps telling me sinusitis is usually temporary and caused by infection...

Also the saline instructions say to spray up one nostril and allow to flow out through the other, and it is impossible to get water to flow from one nostril to the other.

I've been diagnosed with "benign" hypermobility plus collapsed lung, hernia and maybe vaginal stenosis, and my theory at the moment is that all my soft tissues are collapsing, my sinuses among them.

Is this sinusitis, d'you think? Should I try to get my GP to refer me to an ENT? Would they do anything useful?
 
Messages
4,604
Likes
11,349
Location
Alabama USA
I would try and go see a ENT specialist.

There is a product called Ayr that helps with dry nose also I linked it for you HERE.
I hope this is some help.
 
Messages
45
Likes
57
Location
North-west England
Thank you. I'm a little apprehensive about that because when this started happening I moisturised the inside of my nose with lipbalm (I know, that doesn't sound sensible in retrospect!). I woke up choking because the lipbalm had migrated into my lung. (Hint to other forum users: don't put oil-based products up your nose.)

The stronger steroids haven't made any difference so I suppose I'll have to push to see an ENT next time I see the GP. Thanks for the advice.
 

ukxmrv

Senior Member
Messages
4,404
Likes
4,561
Location
London
I had a CT scan of my sinus area and an infection was eating it's way through there. Part of the sinus area had collapsed and It was badly inflamed. There had been a mixture of a silent infection with some facial pain or an obvious active infection with pus blood etc over many years.

My GP did not "believe" that there was such a thing as chronic sinusitis and had refused to send me to a ENT.

My ENT now uses a camera on a tube which goes up the nose to see what is happening rather than a scan each time.

The best things for me have been antibiotics (Docycycline works best for short periods) or some sort of pump with saline and tea tree. However, you have said that when you use saline it won't flow out of the other nostril and it may be that even with the forceful chug, chug of the pump it still won't flow and it could cause damage somewhere.

http://www.hydromedonline.com/hp_landing.html

or a simpler one for when I can't leave my bed

https://www.chemist.co.uk/neilmed-s...u-xVQa_H9bVdpuqDRW3bMG5HP95gR8nxoCi7YQAvD_BwE

My concern would be that no one has done any further investigation other than the light and if was in your position I'd go and see the ENT for a scan if possible.
 
Messages
45
Likes
57
Location
North-west England
Ack!! I'm so sorry you had to go through that, it sounds horrible (and has reminded me of that woman who accidentally killed herself recently by filling the neti pot with tap water that contained a brain-eating amoeba. So I suppose it could all be worse).

One problem I have is that the saline spray says to clean the nozzle with soapy water every time I use it, but I often don't have the energy to do so.

Sounds as if I need to push for a trip to the ENT - will do, but I get the feeling my clinic finds me a nuisance already.
 
Messages
45
Likes
57
Location
North-west England
Thanks to everyone who was so polite and helpful. I requested an appointment with an ENT and now have one for July. Sigh.

The GP prescribed an antihistamine (cetirizine) which works differently from mirtazapine (which I am taking already and which is strongly antihistaminic but apparently not in the right way). It makes my nose run quite a lot although the mucous membranes still don't function the way they used to. However, the inside part is still pinched shut so I'll just have to wheeze for breath till July. I think it also makes me irritable.