i also wrote a mail to Dr. Nancy Klimas about my trying her protocol. She did not reply to my mail. So thats it. If there is any improvements in the weeks to come I will post it
Here would be the reasons why Dr Klimas did not answer you:
1) She is not your doctor. She is not responsible for you. She doesn’t know your case. She hasn ‘t prescribed this medication to you. It would be medical malpractice if she encouragend patients to take dangerous medication on their own. She would risk her entire career and future clinical trials by encouraging folks to take drugs without medical surveilance and without due dilligence.
2) the black box warning on etarnacept:
On May 2, 2008, the FDA placed a
black box warning on etanercept due to a number of serious infections associated with the drug.
[13] Serious infections and
sepsis, including fatalities, have been reported with the use of etanercept including reactivation of
latent tuberculosis and
hepatitis B infections.
[14][15]
There has also been a report of
strongyloides hyperinfection after use of etanercept
This is not to be taken lightly.
Patients taking meds on their own and risking everything should not in my view imperil the chances a doctor has in trialling these drugs the right way, through FDA approved clinical trials that will assess for safety and efficacy of the protocols. These patients receive regular care and careful follow-up to assess side-effects and toxicity of both drugs and combined complications.
The last thing that Dr Klimas wants at this point is just this, patients doing their own trials.