Muscular Dystrophy-like Symptoms

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Glasgow, Scotland
Hi everyone again. Since late 2019, I've been getting muscle wasting issues which continue to steadily get worse, despite taking loads of foods, suppliments, proteins and meal replacements. More recently, I've been developing swollen calves that look huge and out of proportion with my worryingly thin legs. These seem to be continuing to get worse too.

I spoke to a medical student recently who thought that my symptoms sounded like Becker muscular dystrophy, given the swollen calf muscles (which are a hallmark symptom of this) and the age of onset. However, I've got no history of this in my family, making me still convinced that this is yet another health issue I've developed as a result of my mystery "Donnington Disease" condition. This seems to be progressing much more quickly than muscular dystrophy too I would say and I'm now just over 8 stone in weight now, heading towards the 7 stone mark soon I reckon.

My muscles are seriously weak too and I'm in agony straining them to lift objects that aren't that heavy, or to pull myself back up when I bend down for anything (since my legs are most affected with this). Much of my clothes too have became too big and slack for me to wear now because of my much my body has shrunk with this muscle wasting. Often when I sit on hard seats too, my lower pelvis bones hurt as I am sitting directly on them.

Does anyone here know of any conditions or illnesses that would result in these rapidly progressing muscular dystrophy-like symptoms I'm describing? Thanks. I really hope I can find some way to treat this as soon as I can. (as much as I've been saying that for years to no avail)
 

Treeman

Senior Member
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I have muscle decline, I assume mainly due to a reduction in use.

I gain weight easy, but I know there are some who lose weight just as easy.

As a first step I would speak to my GP, ask their opinion and probably a specialist after that.

Good luck.
 
Messages
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Location
Glasgow, Scotland
I have muscle decline, I assume mainly due to a reduction in use.

I gain weight easy, but I know there are some who lose weight just as easy.

As a first step I would speak to my GP, ask their opinion and probably a specialist after that.

Good luck.
Thanks Treeman. I'll see my GP once again to keep them updated on the situation, even though I've no longer got any faith in any of my own doctors.

Maybe if a doctor actually examined these legs though, they would realise how serious of an issue this is and do something.
 
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Could be excess phosphorus.

It may show up as elevated phosphorus in blood serum, but the body goes to great lengths to remove it.
Tests for PTH, FGF23, calcium, magnesium, and kidney function may show why.
Interesting read with these articles. I should mention that I also have all the symptoms of iron deficiency anemia too with this and feel like someone much older who smokes heavily, despite taking iron suppliments.

I'll do some more labs and will check these while I'm at it.
 

Zebra

Senior Member
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Hi, @SeanQHX1

I'm sorry this is happening to you.

I second the suggestion above, that is, suggest you see your GP, who *should* then refer you to a Neuromuscular Specialist.

In the meantime, if you Google "bilateral calf muscle hypertrophy" A LOT of journal articles pop up. Perhaps you'll find a case similar to your and you can arm yourself with that information before you head to the doctor.

Will you please keep us posted?