MUS, PPS services and IAPT integration into NHS primary care - what's happening across the UK?

MeSci

ME/CFS since 1995; activity level 6?
Messages
8,235
Location
Cornwall, UK
Here's one to sign and share widely. Closes on the 26th. It would be good to show the WEP we appreciate the stance they have taken regarding 'MUS'. If you feel able to add a paragraph about the way the BPS school has affected you then please feel free.

http://www.groupcard.com/c/QACkpQAJPMw/Thank-You-Card-for-Women039s-Equality-Party

or tiny: https://tinyurl.com/ljurdhw
I don't know if it's due to my condition, but I've looked several times and all I can see is "Thank you from all of us", recipient "Women's Equality Party", and I can't see any clearer message after clicking "CLICK HERE TO SIGN THIS CARD". It doesn't seem to say what for. Can anyone help?
 

lilpink

Senior Member
Messages
988
Location
UK
I don't know if it's due to my condition, but I've looked several times and all I can see is "Thank you from all of us", recipient "Women's Equality Party", and I can't see any clearer message after clicking "CLICK HERE TO SIGN THIS CARD". It doesn't seem to say what for. Can anyone help?

It's a problem with the way Groupcard is set up. The first comment has been used to very briefly outline the overall message (limited characters preclude a longer message). . I'm a numpty when it comes to adding photos to this site... if someone can tell me how it's done I can add a screen grab.
 

lilpink

Senior Member
Messages
988
Location
UK
I don't know if it's due to my condition, but I've looked several times and all I can see is "Thank you from all of us", recipient "Women's Equality Party", and I can't see any clearer message after clicking "CLICK HERE TO SIGN THIS CARD". It doesn't seem to say what for. Can anyone help?

The text on the first message is: ""Many thanks for stating in your Manifesto that 'medically unexplained symptoms' (MUS) should not be regarded as a mental health condition. Of c. 250k UK patients with ME/CFS, about 3/4 are women. May 12 was International ME Awareness Day. WHO defines it as neurological, not MUS or biopsychosocial."
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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3,061
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UK
http://www.rcpsych.ac.uk/pdf/CALC_Liaison Faculty 201712April.pdf

10-12 May 2017

Royal College of Psychiatrists

Thursday 11 May 2017 MUS – National and International Perspectives

10:10-10:50 How to treat Bodily Distress Syndrome/functional somatic syndromes. Results from a highly specialised university clinic Professor Per Fink, Head, The Research Clinic for Functional Disorders, Aarhus University Hospital, Denmark

11:30-12:00 Somatic symptom disorder Professor Michael Sharpe, Professor of Psychological Medicine, University of Oxford

12:00-12:30 Risk markers for developing Functional Somatic Syndromes Professor Francis Creed, Emeritus Professor of Psychological Medicine, Professor of Psychological Medicine at the University of Manchester
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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3,061
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UK
It would be good to get a very full card of signatures by the deadline of Friday week. I'm surprised more haven't realized what a 'watershed' this is: a UK political party basically going to war on MUS on UK soil. Why more aren't rushing to thank them I have no idea! (Chaps welcome).
You don't have to be politically aligned with with the WEP (though why anyone wouldn't want equal rights for women I'm not sure).. this is simply a 'thankyou' for the recognition that MUS has no place as a spurious 'mental health' condition. Surely everyone who is so exercised by MUS on this forum would want to add their signature?

Signed.

There is a character count limit of around 257 characters for the message.
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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3,061
Location
UK
It's a problem with the way Groupcard is set up. The first comment has been used to very briefly outline the overall message (limited characters preclude a longer message). . I'm a numpty when it comes to adding photos to this site... if someone can tell me how it's done I can add a screen grab.

To insert an image into a post, you will need to park the file online somewhere (you could use http://tinypic.com/ if you don't have a blog or website where you can upload an image to).

Then copy the URL for its location; then click the Image button in the editor (looks like a sun over mountains, to the immediate right of the Smiley button). A field will display into which you insert the URL for where the image file has been parked.

Or, make a screen grab, resize it, save the image as a .jpg or .png file and click "Upload a File" (centre button on right, next to "Post Reply").
 

lilpink

Senior Member
Messages
988
Location
UK
Thankyou Suzy! This is the screenshot of the WEP MUS policy statement in their manifesto here:

https://d3n8a8pro7vhmx.cloudfront.n...3495_Manifesto_2017_V4_Singles.pdf?1494600051

(Page 26).

It's worth reading more of the health policy statements such as:
"There are many different examples of gender inequalities in health care. Men are less likely to seek medical help and their life expectancy is shorter, which many researchers have attributed to toxic masculinity. Women’s symptoms and pain are too often disbelieved and are treated less effectively. Women are more likely than men to be told their symptoms are psychosomatic, to be dismissed without further investigation, and even to be given sedatives rather than adequate pain relief. ""
 

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Countrygirl

Senior Member
Messages
5,651
Location
UK
http://www.rcpsych.ac.uk/pdf/CALC_Liaison Faculty 201712April.pdf

10-12 May 2017

Royal College of Psychiatrists

Thursday 11 May 2017 MUS – National and International Perspectives

10:10-10:50 How to treat Bodily Distress Syndrome/functional somatic syndromes. Results from a highly specialised university clinic Professor Per Fink, Head, The Research Clinic for Functional Disorders, Aarhus University Hospital, Denmark

11:30-12:00 Somatic symptom disorder Professor Michael Sharpe, Professor of Psychological Medicine, University of Oxford

12:00-12:30 Risk markers for developing Functional Somatic Syndromes Professor Francis Creed, Emeritus Professor of Psychological Medicine, Professor of Psychological Medicine at the University of Manchester


:depressed::depressed::depressed::woot::woot::ill::ill::ill:

Geesh! A new Infernal Trio: FINK :mad:; Sharp :aghhh: and Creed :sleep:. It's enough to drive us all to drink. :meh::wide-eyed:
 

trishrhymes

Senior Member
Messages
2,158
Workshop 3: Current understanding, dilemmas and debates in chronic fatigue syndrome Dr Al Santhouse, Consultant in Psychological Medicine, South London and Maudsley NHS Foundation Trust

Anyone know anything about this doctor?

Idle thoughts of an idle fellow Professor Sir Simon Wessely, President of the Royal College of Psychiatrists :vomit::vomit::vomit::vomit:

Fink, Sharpe and Creed spreading more lies.

I despair.
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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3,061
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UK
http://www.bmj.com/content/340/bmj.c738

Defeatism among clinicians is undermining evidence that it can be treated

  1. Alastair M Santhouse, consultant in psychological medicine1,
  2. Matthew Hotopf, professor of general hospital psychiatry2,
  3. Anthony S David, professor of cognitive neuropsychiatry3

  1. Author affiliations
  1. alastair.santhouse@slam.nhs.uk
-----------

http://www.meactionuk.org.uk/reasons-for-patient-disenchantment.htm

Evidently Dr Santhouse was a member of the NICE G53 Guideline Development Group.
 

Countrygirl

Senior Member
Messages
5,651
Location
UK
Workshop 3: Current understanding, dilemmas and debates in chronic fatigue syndrome Dr Al Santhouse, Consultant in Psychological Medicine, South London and Maudsley NHS Foundation Trust

Anyone know anything about this doctor?

Idle thoughts of an idle fellow Professor Sir Simon Wessely, President of the Royal College of Psychiatrists :vomit::vomit::vomit::vomit:

Fink, Sharpe and Creed spreading more lies.

I despair.



https://www.national.slam.nhs.uk/wp-content/uploads/2011/06/Chronic-Fatigue-Service-booklet.pdf

Dr Alastair Santhouse is apparently a miracle worker with Prof Trudie Chalder whose CFS service is at the cutting edge of CFS research :confused:. 65% of his CFS patients are much improved, even recovered, with GET/CBT. When he isn't performing such miracle cures he is touring the country spreading the good news of his amazing success with the medical profession. :whistle::rolleyes:
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
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3,061
Location
UK
I have an audio of the Fink Birthday Aarhus Symposium from 2014.

Creed, Sharpe and Peter White were all speakers at that Symposium and they were all over Fink.

How "wonderful" he was - how he had "saved that girl [sic]" whom the protest outside was about.

Makes for very queasy listening.
 
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