Mold without mold?

[Martin aka paused||M.E.]

Hi dear PR folks,
now that my Great Plains Lab results have arrived I have the confirmation of what I thought: mold toxicity.

I lived with black mold for six years. But when I got very severe I moved to my parents and this is a 20 years old building without mold. But some levels are quite high (see the attached pictures).

So, what can I do? My immune system is very very weak do I think that is the main issue.
But not easy to fix. I have an appointment with an immunologist in September. I hope he has some ideas.

But I want to do sth against the toxicity. So this is what I noted from Shoemaker:

- Renovate the room: get rid of the carpet, get a new matrasse etc...
- Get a HEPA filter
- wash all clothes and the bed linen with an antifungal laundry detergent
- low carb diet
- supplements: L-Glutathione, alpha-lipoic acid, NAC, Resveratrol, Curcumin, Omega 3, chlorella.

Is that everything? Should I take nystatin? I don't want to take a heavy antifungal like Itraconazole because I already take Tenofovir.

Thank you very much!

 

[Irat]

Dr.Neil Nathan is the specialist in mold toxicity.his book is called toxic he has many podcasts,videos and stuff you can read on the internet.i can t recall all right now what are his suggestions on the mold detox.
About your belongings,ppl from the mold avoidance group say one has to throw out everything which was in touch from mold ones,but I don t know. @Martin aka paused||M.E.

 

[Irat]

https://neilnathanmd.com/detoxification-of-mycotoxins/

https://neilnathanmd.com/category/mold-toxicitymethylation/

https://daveasprey.com/mold-combo-dr-christensen-and-dr-nathan-829/

 

[Martin aka paused||M.E.]

throw out everything which was in touch from mold ones

I hope there's another solution. Thank you very much!

 

[Irat]

I hope there's another solution. Thank you very much!

I just know this cause we have many ppl with mold toxicity in the MCS group. But best you ask someone who has mold toxicity what to do. Neil Nathan I really appreciate a lot,he also treats other stuff and his approach is really gentle and individual and helps ppl who don t tolerate usual medical treatment .his knowledge is huge

 

[Martin aka paused||M.E.]

I just know this cause we have many ppl with mold toxicity in the MCS group. But best you ask someone who has mold toxicity what to do. Neil Nathan I really appreciate a lot,he also treats other stuff and his approach is really gentle and individual and helps ppl who don t tolerate usual medical treatment .his knowledge is huge

Unfortunately, he only has recommendations for mold metabolites I don’t have.

 

[Irat]

Unfortunately, he only has recommendations for mold metabolites I don’t have.

Mabey joining a mold group on FB. (But not the mold avoidance group,they will tell you to move out into the desert ,lol ) I think you need to have a binder on board to detoxify mold

 

[Martin aka paused||M.E.]

Mabey joining a mold group on FB. (But not the mold avoidance group,they will tell you to move out into the desert ,lol )

😅 ok 👌🏼

 

[Irat]

Do you use a binder ? That's what Nathan says

if you
add binders all at once, or in doses that are too high, many of your
patients will experience a severe worsening. This is one the most
common mistakes and unfortunately will sometimes result in the
patient giving up on treatment. GO SLOW and follow your patient’s
response carefully. Be sure that you are using binders that will cover
ALL of the mycotoxins found on urine testing. Using one or two will
limit treatment success and the patient will often tread water until
your binder program is comprehensive.

most common mistakes that I see are when practitioners add
antifungal treatments, prescriptions or herbal, before the binders are in
place. Killing mold or Candida before binders are in place often
result in a severe die-off reaction which can last for weeks or even
longer.

@Martin aka paused||M.E.

 

[Martin aka paused||M.E.]

Do you use a binder ? That's what Nathan says

if you
add binders all at once, or in doses that are too high, many of your
patients will experience a severe worsening. This is one the most
common mistakes and unfortunately will sometimes result in the
patient giving up on treatment. GO SLOW and follow your patient’s
response carefully. Be sure that you are using binders that will cover
ALL of the mycotoxins found on urine testing. Using one or two will
limit treatment success and the patient will often tread water until
your binder program is comprehensive.

most common mistakes that I see are when practitioners add
antifungal treatments, prescriptions or herbal, before the binders are in
place. Killing mold or Candida before binders are in place often
result in a severe die-off reaction which can last for weeks or even
longer.

@Martin aka paused||M.E.

Cellcore BioToxin Binder seems to be quite good. I will dive deeper. Thank you 🙏

 

[hapl808]

There's a lot of mold info out there. I had a severe reaction to something in my house, but strangely happened after a different allergic reaction. No mold testing came up with anything in the house. I didn't do the urine testing as I researched it and just couldn't find evidence to support its accuracy or utility.

That said, I was having extreme reactions to things, so I didn't have to guess. If a pillow made me cough and hack, it went into the trash. I found dust that previously didn't irritate me caused me a lot of issues, so things like cables and such are in airtight boxes. A lot was just trial and error for laundry, cleaning, etc.

I also saw a Shoemaker protege who diagnosed me with mold toxicity (and possibly fish toxins). I'm not sure I really believe the VCS testing, and his treatment didn't seem to do anything for me. MARCONS testing was negative. I did cholestyramine and it was fine, but then I suddenly had a weird allergic reaction to it after taking a full dose for weeks. He told me to call my GP if I was having an allergic reaction, and at that point I was done with him.

I still think there's something there, but I'm not sure the Shoemaker protocol or throwing out every item you own and living in the desert are the only answers. Nathan's book is good, although was mostly stuff I already knew. My complaint about Shoemaker is the same as about lyme doctors and other things: much of it is based on unproven theories and their success rate is high when you ask them and low if you talk to any patients.

 

[hapl808]

Also, the mold advocates will tell you that a 20 year old building in any climate can absolutely still have mold. I have no idea if that's true. Obviously mold is everywhere, but knowing when it's a problematic level or strain (and to whom it's a problem) is a whole other matter.

 

[godlovesatrier]

Yeah as for the dessert comment, Cort literally lives in the dessert to get his symptoms under control and at baseline. No idea what you could do to emulate that where you are! Not much I expect. Good luck tracking down this pesky bugger tho.

 

[Martin aka paused||M.E.]

I didn't do the urine testing as I researched it and just couldn't find evidence to support its accuracy or utility.

I read that the Great Plains Lab test is most accurate. Hm would be very surprising if here was mold. I don’t think so.
but as I lived with mold for six years and got sicker and sicker I think it plays a part and might be a primer for my immune reactions (neuroinflammation). Could be wrong but hell, what could be right out there!?! 95% of what i have seen here is questionable: Infection persistence diagnosis based only on IgG, MCAD based on symptoms etc. So I think its worth a - costly - try.
If it doesn't change anything I have ruled sth out at least

 

[seamyb]

I lived with black mold for six years. But when I got very severe I moved to my parents and this is a 20 years old building without mold. But some levels are quite high (see the attached pictures).

I lived with black mold for years and then actual fungi growing out of a leak for a few more. My house now has no signs of water damage or any mold (apart from coats I found in the wardrobe which were taken from the old moldy houses).

So it would be very difficult to argue that it's the house with no signs of mold that is significantly worse than the house with mushrooms growing out of the ceiling.

Regardless, I am going to try and remediate my house, while trying all the bodily mold treatments.

Here are two recipes for mold remover:

https://stingysailor.com/2017/02/11/remove-and-prevent-mildew-for-pennies/

You should be able to apply these to furniture and clothes with no issues.

 

[Martin aka paused||M.E.]

If you decide to renovate, I would look deeper into for which products are used. We renovated and ended up involving an expert, cause many products used can be harmful again.

Rocket science

 

[seamyb]

Rocket science

Excellent idea, there's no mold in space. Nobody hears us scream down here anyway.

 

[hapl808]

Could be wrong but hell, what could be right out there!?! 95% of what i have seen here is questionable: Infection persistence diagnosis based only on IgG, MCAD based on symptoms etc.

And like you, this is what I always come back to. If I weren't actually experiencing all these reactions, I could explain in detail why it doesn't make sense. So I continue onward trying to separate the real quackery from the things that only sound like ducks.

 

[Woof!]

Also, the mold advocates will tell you that a 20 year old building in any climate can absolutely still have mold. I have no idea if that's true. Obviously mold is everywhere, but knowing when it's a problematic level or strain (and to whom it's a problem) is a whole other matter.

My one-year-old custom-built home got black mold because, unbeknownst to me at the time, the wrong circumstances were in place: wood-framed windows covered with curtains plus construction that didn't allow for air flow. Also, while I thought the presence of two wood-burning fireplaces would dry out the home, they actually increased its moisture.

It's not the age of the home...

 

[hapl808]

Yes, so then we're back to always wondering. My air levels show less fungus than outside baselines. No inspectors have found any moisture. Mycotoxin tests on whole house air filters show nothing unusual. But does that mean I don't have an issue with it? No idea, and maybe it can change on a day-to-day basis.

I have great air flow, all hardwood floors and no carpets, multiple HEPA. I still have to put on a P100 occasionally when things irritate me.