JoanDublin
Senior Member
- Messages
- 369
- Location
- Dublin, Ireland
Hi again,
I had a but of a Eureka moment tonight and it wasn't very pleasant so I thought I would check out with your guys what you think.
If anyone had asked me before tonight what level ME my young lad had I would have said 'moderate' but now I'm actually beginning to wonder if I'm in denial and he has a more severe form of the illness.
I know you can't 'diagnose' him but just, based on your experiences, what do you think?
- He hasnt been able to leave the house for a number of months
- He doesnt see any friends at all
- He rarely leaves his bedroom except most days to come down for dinner, then he goes back up. Some days he just can't make it down so he has his dinner in his room.
- He sleeps all day mostly til about 5pm - he doesnt sleep at all during the night
- He has no energy to do anything at all except come down the stairs maybe once or twice a day
- He has joint and muscle pains now all the time
- He can't bear light - his room is like a cave and he asked me could I get darker curtains for it
- The mere thought of having to leave the house for a doctor or hospital appointment sends him into a spin. If the appointment is in the morning he tries not to fall asleep because he knows he struggles really hard to wake up again. Late evening appointments are a bit better - but not much
- He hasnt been able to attend school at all since January of this year and even then it was only for a few half days. He has effectively missed two whole years of school
I am so worried that he is developing a severe level of this disease but I just don't know. Last week I had made an appointment with his GP to get her to check balance issues he has been having and he couldnt make the appointment even though it was at 5pm in the evening. I would have had to drag him out of the bed and bring him down - in tears....
Any insight would be appreciated
Thanks
I had a but of a Eureka moment tonight and it wasn't very pleasant so I thought I would check out with your guys what you think.
If anyone had asked me before tonight what level ME my young lad had I would have said 'moderate' but now I'm actually beginning to wonder if I'm in denial and he has a more severe form of the illness.
I know you can't 'diagnose' him but just, based on your experiences, what do you think?
- He hasnt been able to leave the house for a number of months
- He doesnt see any friends at all
- He rarely leaves his bedroom except most days to come down for dinner, then he goes back up. Some days he just can't make it down so he has his dinner in his room.
- He sleeps all day mostly til about 5pm - he doesnt sleep at all during the night
- He has no energy to do anything at all except come down the stairs maybe once or twice a day
- He has joint and muscle pains now all the time
- He can't bear light - his room is like a cave and he asked me could I get darker curtains for it
- The mere thought of having to leave the house for a doctor or hospital appointment sends him into a spin. If the appointment is in the morning he tries not to fall asleep because he knows he struggles really hard to wake up again. Late evening appointments are a bit better - but not much
- He hasnt been able to attend school at all since January of this year and even then it was only for a few half days. He has effectively missed two whole years of school
I am so worried that he is developing a severe level of this disease but I just don't know. Last week I had made an appointment with his GP to get her to check balance issues he has been having and he couldnt make the appointment even though it was at 5pm in the evening. I would have had to drag him out of the bed and bring him down - in tears....
Any insight would be appreciated
Thanks