Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The one month duration of fatigue was just the initial screening question for a more in depth interview.
I am not trying to defend the CDC, they obviously do not understand CFS, but just want to point out that they are not saying one month of fatigue = CFS.
And, this was after the misappropriation of funds!
The Emperor is stark naked...
and stark staring mad.
I think you need a new attitude. How many of us didn't KNOW that we had less energy than normal people before this study came out.
They will announce, and it will be a bump in the road, but then other people will replicate it, and it will actually expose them for who they are. They will become completely irrelevant.
What a truly wonderful day that will be!!!!
I agree if the diagnosis is soon XMRV+ then the disease is no longer 'unexplained' and one simply walks away from CFS/ME as the rubbish it is. A rubbish that stuck us in the garbage bin upside down.....
Last month, I had a colonoscopy with deep sedation. As the anaesthetist ran through his list of questions, I asked him if he had heard the news about CFS and XMRV. He shook his head, so I told him what was known so far. Bless him, when I said retrovirus, he gulped really, really hard, then said "I knew it had to be caused by something." But the look on his face and that gulp will stick with me. It spoke volumes about the change in attitude that might be just around the corner.