YippeeKi YOW !!
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MODERATOR NOTE: THE INITIAL POSTS IN THIS THREAD HAVE BEEN MOVED FROM 'UPDATES AND FOLLOW UPS,' SINCE THEY LED TO A WONDERFUL NEW DISCUSSION
This is a miserable, unpredictable, vicious, almost vindictive, major curse of an illness, like something the Olympian gods would have visited on one of their hapless victims.
But remember, things can change. If you're able, keep browsing threads for input from others dealing with some of your same issues, or checking out cures or helps or whatever. It's beneficial to keep hope alive. It's also sometimes incredibly hard.
But right now, the biggest help is probably what you're doing: hunkering down, conserving energy, and using it with your BF and mother, and of course, the inimitable Miss Clara.
I keep thinking of how badly knocked around I felt for a long time after my spinal surgery, and how desperate it made me feel about absolutely everything. The Drs answer, of course, was to put me on a course of brand new untried anti-depressants, which actually made me suicidal. Avoid avoid avoid.
It was only years later that I learned about the vicious effects of all the drugs used during surgeries, even the ones that dont knock you out completely, whimsically called 'twilight sleep', as well as the antibiotics, etc. I don;t mean to be an idiot Pollyanna (tho I often am .... it's my coping device), but there could be some answers there in the history of the anaesthetics and antibiotics that they used. Of course, you'll have to dig up the information about their side-effects and the duration thereof yourself.
If I can be of any help in that regard, please, please please PM or tag me and let me know what would be of assistance. On m ygood days, I can be a hellatious researcher and would love to put that at your disposal ...
I hope it's OK if I tag you from time to time when I start feeling uneasy. I'll keep it to a minimum ....
Sending you (and your BF and of course, Miss Clara) great wafts of affection and hope and support, and for you, hugs

.... OK, who am I kidding. For you and Miss Clara. I don;t know your BF well enough to include him in anything but the affection part, for his hanging in so lovingly and faithfully ....
Oh, foof, I'm so very sorry. I know you had high hopes for the srugical intervention, as did we all for you, and for a brief moment there, it seemed to live up to its promise.I just haven’t been online much because I’m trying desperately to preserve some energy.
This is a miserable, unpredictable, vicious, almost vindictive, major curse of an illness, like something the Olympian gods would have visited on one of their hapless victims.
But remember, things can change. If you're able, keep browsing threads for input from others dealing with some of your same issues, or checking out cures or helps or whatever. It's beneficial to keep hope alive. It's also sometimes incredibly hard.
But right now, the biggest help is probably what you're doing: hunkering down, conserving energy, and using it with your BF and mother, and of course, the inimitable Miss Clara.
Have you been able to consult with ay of your Drs re this?I’m not doing too well. I fear I am progressing to a more severe edge of “moderate” and don’t know how to stop the progression. I’m terrified
I keep thinking of how badly knocked around I felt for a long time after my spinal surgery, and how desperate it made me feel about absolutely everything. The Drs answer, of course, was to put me on a course of brand new untried anti-depressants, which actually made me suicidal. Avoid avoid avoid.
It was only years later that I learned about the vicious effects of all the drugs used during surgeries, even the ones that dont knock you out completely, whimsically called 'twilight sleep', as well as the antibiotics, etc. I don;t mean to be an idiot Pollyanna (tho I often am .... it's my coping device), but there could be some answers there in the history of the anaesthetics and antibiotics that they used. Of course, you'll have to dig up the information about their side-effects and the duration thereof yourself.
If I can be of any help in that regard, please, please please PM or tag me and let me know what would be of assistance. On m ygood days, I can be a hellatious researcher and would love to put that at your disposal ...
I hope it's OK if I tag you from time to time when I start feeling uneasy. I'll keep it to a minimum ....
Sending you (and your BF and of course, Miss Clara) great wafts of affection and hope and support, and for you, hugs
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