JaimeS
Senior Member
- Messages
- 3,408
- Location
- Silicon Valley, CA
I was also quoting lol
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The trouble is most people making comment about this disease without actually having first hand experience of it talk crap. Working out whether it's patriarchal crap or just the regular crap is a bit tricky......it's still crap.
I am a man with a beard btw (I only grew it though so I don't have to waste energy shaving every day)
Richard: I often use a diagnosis called neurasthenia. It is, that is, I do not know what the criteria actually are for it, but I think it is such an incredibly good diagnosis
However from 1970 when McEvedy and Beard started reframing the debate
McEvedy and Beard
Beard
Example of that shameless and proud ignorance (GPs interrogated about MUS)
http://onlinelibrary.wiley.com/doi/10.1111/1467-9566.12581/full
I guess if you can cram a square box into a round hole, then you can cut the corners and call it a round box!Our health system has an obsession with labels.
I guess if you can cram a square box into a round hole, then you can cut the corners and call it a round box!
Isn't that obsessive compulsive disorder?You're speaking my language. .... see how it keeps everything so tidy.
Circularity syndrome?Might need a new diagnostic label for the atypical features involving cutting corners off boxes. Any suggestions.
Circularity syndrome?
Yes ... but with attitude!Isn't that obsessive compulsive disorder?
Not fully read the thread yet, but there are beginning to be visitor posts on MEA and AfME fb pages.
Another good chance to push a point of view that may be read by other than PR members. Likes and comments useful.