Me/cfs or MS??

[rogers1973]

Dear people,


I am from the Netherlands and i am in a grey area. Neuro’s said it is not MS, altough symptoms. I know that symptoms of ME/CVS and MS are very simular. Here is my story:


I had mri’s in 2016 (brain),2017 (brain/neck/back) 2018 (brain). MS neuro only find 3 small hyperintens lesions in the front lobe of my brain, non specific (not MS due to place/size). My lumbar puncture showed a “high protein total” (no MS).


-quickly tired

- power loss in limbs

-somethimes numbness limbs at night

- muscle tension legs (especially in thighs)

-some joint pain knees, ankles

-spiertractions at random

-nerve pricks randomly (mainly legs)

-swallowing problems, food drops very slowly, pain at chest

-quickly cold hands / feet

-dry mouth, irritated tongue, sticky saliva

-pain neck, at base skull

-Excercise intolerance

-internal vibrance inside my body

-dishydrotic eczema fingers

-foamy urine

-i have alopecia areata


Are these typecally symptoms of me/cvs?

 

[crypt0cu1t]

I would encourage you to test for various autoantibodies and inflammatory markers.

Try the Mayo Autoimmune Dysautonomia & encephalitis panels along with An autoimmune neurology workout from Quest.

 

[Lisa108]

Hi @rogers1973, welcome to the forum! I don't know if you can order the lab tests @crypt0cu1t mentioned above, as I see that you are in the netherlands. But reading your list of symptons I thought "maybe autoimmune disease", too.

Lupus erythematodes and Sjögren's Syndrome came to mind. My rheumatologist did an extensive panel for me, though in my case all came back negative.

Maybe a good dermatologist could be of help, too. I've also got eczema and had psoriasis excluded (could cause joint pain - psoriasis arthritis).

And did you have your thyroid checked? At minimum free T3, free T4 and TSH.

Hope you'll find out more soon. Best wishes!