Not that we dont still do it, but point taken. It's generally acknowledged as cruel and criminal
ME/CFS is a living death--why mortality isnt what matters in illness advocacy
- Thread starter frozenborderline
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- Tags koroshetz livingdeath me/cfs activism nih quality of life
I think a lot of people may agree with the headline but in my view the important thing is I gathered all the possible statistics I could and combined that with discussion of why we culturally ignore quality of life and only care about mortality and acute illness, which is p common and major issue.
I'm hoping someone will be willing to post this on reddit or some other forums , or facebook
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I wonder if we could engage the HIV/AIDS community and get them to help us get the word out? Use the shared parallel of suffering over decades.?
Well there are a couple people in this community who also have HIV/AIDS , and one of them was a member of act up before having me/cfs I believe. Terri wilder.