Was hoping you could give me some advice.
I have been back and forward to my GP for 2 years now with different things wrong; blood tests have come back inconclusive, scans have shown nothing and now I'm back with more strange things going on (more bloods to be taken today).
I am absolutely sick of feeling like death warmed up and loathe going back to the doc with yet another thing wrong with me (I find myself apologising to her each time I go in) and find myself avoiding it until things get really bad.
I had a bit of a lightbulb moment the other night and wondered if I had ME/CFS. Of course nobody wants this but it really would be good to get some sort of diagnosis.
I was hoping/wondering if any of you could read my (extensive!) list of symptoms and let me know if you think it's plausible?:
•Persistent headaches that are not typical migraines (although do suffer from them as well occasionally which are treated with beta blockers) mainly behind the eyes and back of head – have been experiencing this for over a year
•Symptoms of IBS – chronic diarrhea, bloating – have been experiencing at the current level for approximately 6 months but has been there for a couple of years
•Noticeable deficit in short term memory, ability to focus/concentrate for the past 18 months or so
•Constant tinnitus in left ear for 2 years (MRI shows no abnormality)
•Regular heart palpitations (have been checked for heart problems and been given all clear)
•Recently started muscle twitches all over body, always there to greater or lesser extent
•Recently started unexplained pains all over body (come and go quickly – often within a couple of minutes)
•Recently started experiencing severe fatigue in arms – feel like two lead weights (one arm is often better than the other – but they swap)
•Unbelievable fatigue that can be there when I wake up or hits me out of the blue during the day –I could be fine and then could be literally crumple on to the floor within seconds, this isn’t every day but very regularly (I’d say the percentage of affected days is currently about 70%) – have been experiencing this for at least a year
•Get unwell (sore throats/flu/infections) more often than usual
•Occasional unexplained nausea/vomiting
•Anxiety and panic attacks (have managed to reduce the panic attacks with mindfulness)
•Get very cold very easily – e.g. husband and daughter can put on a jumper to counter the cold when I have to put on 5 layers and still feel the cold. Also have night sweats.
•Go through phases of insomnia and wanting to sleep all the time
•Very recently noticed a heightened sense of smell (N.B. I recently had a brain MRI that came back normal)
Thanks tonnes for getting this far!