godlovesatrier
Senior Member
- Messages
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- United Kingdom
Hi all,
I am sure this is an old idea that's appeared before but I've never see anyone mention it. I've been reading about viral encephalitis and auto immune encephalitis to explain my primary symptom which is now persistent inflammation of the brain and base of the skull along with neck stiffness. That progresses to dizziness/muscle fatigue, gastro symptoms and then everything else generally in that order.
http://www.irishhealth.com/askdoc.html?q=2462&qasect=8
The description here explains what many of us have faced in terms of our symptomatic picture. But could it be that when we got sick with our mysterious viral infection, which many of us have in common, that our brains underwent brain damage due to the encephalitis and this then caused our brain tissue and cells to behave abnormally. This site says it can lead to psychological symptoms due to hormone dis regulation which would explain the mood changes and sudden anxiety/depression around fatigue onset (PEM), https://www.encephalitis.info/physical-difficulties-after-encephalitis . It also highlights the headaches and other symptoms that afflict many of us.
So could it make sense that (some) not all of us have faced brain injury after our bodies have fought off a viral encephalitis like infection? Or another virus like the flu has triggered auto immune encephalitis? It doesn't explain the collagen issue for those that have it, but I don't know how you would test for this if someones skull and joints are not hyper mobile/unstable?
Could this also not explain the brain inflammation found via the PET SCAN's from last year's study - which showed brain inflammation in several ME patients?
Also would an MRI pick up mild brain damage caused by encephalitis? I went to one of the UK's worst hospitals for my MRI, which makes me not want to trust it. Does anyone know of any UK doctors in the north west who diagnose these conditions and can look into them? I've asked the same question of the encephalitis organisation above.
I'd be interested to hear peoples thoughts and experiences.
I am sure this is an old idea that's appeared before but I've never see anyone mention it. I've been reading about viral encephalitis and auto immune encephalitis to explain my primary symptom which is now persistent inflammation of the brain and base of the skull along with neck stiffness. That progresses to dizziness/muscle fatigue, gastro symptoms and then everything else generally in that order.
http://www.irishhealth.com/askdoc.html?q=2462&qasect=8
The description here explains what many of us have faced in terms of our symptomatic picture. But could it be that when we got sick with our mysterious viral infection, which many of us have in common, that our brains underwent brain damage due to the encephalitis and this then caused our brain tissue and cells to behave abnormally. This site says it can lead to psychological symptoms due to hormone dis regulation which would explain the mood changes and sudden anxiety/depression around fatigue onset (PEM), https://www.encephalitis.info/physical-difficulties-after-encephalitis . It also highlights the headaches and other symptoms that afflict many of us.
So could it make sense that (some) not all of us have faced brain injury after our bodies have fought off a viral encephalitis like infection? Or another virus like the flu has triggered auto immune encephalitis? It doesn't explain the collagen issue for those that have it, but I don't know how you would test for this if someones skull and joints are not hyper mobile/unstable?
Could this also not explain the brain inflammation found via the PET SCAN's from last year's study - which showed brain inflammation in several ME patients?
Also would an MRI pick up mild brain damage caused by encephalitis? I went to one of the UK's worst hospitals for my MRI, which makes me not want to trust it. Does anyone know of any UK doctors in the north west who diagnose these conditions and can look into them? I've asked the same question of the encephalitis organisation above.
I'd be interested to hear peoples thoughts and experiences.