Diabetics with ME

--
D

Quick Overview

Category
Support Group
Language
Total members
2
Total events
0
Total discussions
5
Total views
112
Total albums
0

ME & Blood Sugar

Leopardtail

Senior Member
Messages
1,151
Likes
862
Location
England
This thread is intended to provide a place where scientists (or those interested in the science) may discuss how the biochemistry of ME may affect blood sugar control in patients with co-morbid diabetes. It will also contain material relating to hypoglycaemia.

Topics might include:
  • Hyperinsulinaemia (excessive insulin production)
  • Hypoglycaemia (low blood sugar)
  • Hyperglycaemia (high blood sugar)
  • The mechanisms the body uses to manage blood sugar.
 

Nielk

Senior Member
Messages
6,963
Likes
10,675
I just discovered this group. It doesn't seem too active though. I suffer from ME and have been diagnosed two months ago with diabetes. Any advice for me?
 

Leopardtail

Senior Member
Messages
1,151
Likes
862
Location
England
Niel,

The group hasn't existed for very long. A couple of obvious questions: do you also have diabetes; and what if any blood sugar problems have you been having since you got ME?
 

Leopardtail

Senior Member
Messages
1,151
Likes
862
Location
England
Niel,

how long have you had ME and how severe is it on the Bell Scale? The severity of your ME affects how it might impact upon your diabetes. Also do you suffer type I or type II daibetes?

Leo
 

Nielk

Senior Member
Messages
6,963
Likes
10,675
Hi Leo.

I was just diagnosed with diabetes about four months ago. I had a three hour glucose test which showed my glucose was high. I was out in metformin. And a diet.

I don't know if there is any connection with ME/CFS.

I was having symptoms of feeling very thirsty and waking up at night for bathroom.

What about you?

My best,
Gabby
 

Leopardtail

Senior Member
Messages
1,151
Likes
862
Location
England
Gabby,

I have had diabetes (type I in my case) almost since birth, it was the ME that came second for me. The ME made my diabetes very unstable once it became severe enough. The Metformin they have put you on will help both your diabetes and possibly the ME.

I have found that we very severe ME (usually couch bound or bed bound) I develop Insulin resitance and need either much more insulin or to restrict food in order to keep control of my blood sugars (this seems to be caused by very poor ATP production). With more moderate ME severity I am prone to hypos between meals (this seems to have more to do with production of Cortisol or Epinephrine).

How about the ME Gabby, how long have you been diagnosed with that, how sever is it?

Leo
 

Leopardtail

Senior Member
Messages
1,151
Likes
862
Location
England
CFS Ability Scale - a rough measure of how disabled you are
The fatigue in CFS is both mental and physical. For some sufferers, the physical is the greatest burden and for others, the mental fatigue is most troublesome. This scale was developed by Dr David Bell [1] as a clinically useful way to assess response to treatment - combines the physical and mental acitivity with level of wellness. This is not very satisfactory because different people suffer in different ways but gives an idea of the level of disability.

100: No symptoms with exercise. Normal overall activity. Able to work or do house/home work full time with no difficulty.

90: No symptoms at rest. Mild symptoms with physical activity. Normal overall activity level. Able to work full time without difficulty.

80: Mild symptoms at rest. Symptoms worsened by exertion. Minimal activity restriction needed for activities requiring exertion only. Able to work full time with difficulty in jobs requiring exertion.

70: Mild symptoms at rest. Some daily activity limitation clearly noted. Overall functioning close to 90% of expected except for activities requiring exertion. Able to work/do housework full time with difficulty. Needs to rest in day.

60: Mild to moderate symptoms at rest. Daily activity limitation clearly noted. Overall functioning 70% to 90%. Unable to work full time in jobs requiring physical labour (including just standing), but able to work full time in light activity (sitting) if hours are flexible.

50: Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity; overall activity level reduced to 70% of expected. Unable to perform strenuous duties, but able to perform light duty or deskwork 4 - 5 hours a day, but requires rest periods. Has to rest/sleep 1-2 hours daily.

40: Moderate symptoms at rest. Moderate to severe symptoms with exercise or activity. Overall activity level reduced to 50-70% of expected. Able to go out once or twice a week. Unable to perform strenuous duties. Able to work sitting down at home 3-4 hours a day, but requires rest periods.

30: Moderate to severe symptoms at rest. Severe symptoms with any exercise. Overall activity level reduced to 50% of expected. Usually confined to house. Unable to perform any strenuous tasks. Able to perform deskwork 2-3 hours a day, but requires rest periods.

20: Moderate to severe symptoms at rest. Unable to perform strenuous activity. Overall activity 30-50% of expected. Unable to leave house except rarely. Confined to bed most of day. Unable to concentrate for more than 1 hour a day.

10: Severe symptoms at rest. Bed ridden the majority of the time. No travel outside of the house. Marked cognitive symptoms preventing concentration.

0: Severe symptoms on a continuous basis. Bed ridden constantly, unable to care for self.
 
Messages
9
Likes
10
Location
USA
I have never seen this scale. I am to be able to quantify the effects of such an evasive illness. Definitely functioning around a 20.

Any reading suggestions for CFS and Diabetes?

Thanks and wishing all a gentle day.