MCAS, CFS and winged scapula: a strange connection

[Aidan]

I have had CFS for around 6 years and starting roughly 2 years in, I began developing MCAS issues that progressively got worse and worse. It was only last year that I figured out the problem is MCAS, and before I just thought my symptoms were part of CFS. I react badly to almost every food and have a bizarre problem I have detailed in previous posts where I react very strongly to vitamin d and calcium. The strange thing about the reactions is that they give me energy that allows me to physically exert and in fact they compel me to do so, as I need to physically exert to get some relief from all the awful symptoms that come along with the rush of over the top hyper energy.

Anyway, I found some improvement using quercetin and other strategies and also moving away from mold but recently I found a real game changer that is making me think that my MCAS may entirely be the result of my winged scapula and trapped nerve issues that I have had for over a decade (perhaps even my cfs too). Since 14 years old I developed winged scapula from muscle imbalances due to the way I was training at the time and I didn't really address it so it got worse and worse, and eventually moving my shoulder in a certain way would cause a load of tension to build up in my armpit in what felt like a tendon (I believe now it is the brachial nerve) and then sometimes it pops and the painful tension is relieved, and sends a shooting sensation down my arm into my fingers and causes my pectoral muscle and bicep on that side to spasm.

So the "real game changer" that has improved my symptoms is doing this strange stretch I made up that stretches my pecs and puts my brachial nerve under lots of tension, but then after it I feel like my mcas reactions which I deal with non stop are so much better almost immediately. Less brain fog, more comfortable feeling in body, ptosis is now gone (before I would permanently had droopy ptosis eyelids with a tension feeling in them.) I will not go into too much detail but I am wondering if anyone else has had issues with trapped nerves or winged scapula like this and found it influenced their CFS or MCAS?

 

[Dysfunkion]

I was reading about your D and calcium problems recently in previous posts, a lot of what you're dealing with I am too. My diet isn't high in calcium and I haven't tried a calcium supplement directly, I do get some though. High calcium after the smallest doses of D3 seems highly unlikely considering my diet too, though I do take K2 Mk7 100 mcg every day because it helps me for some reason. No stretches or massages seem to do anything for me though. What is your reaction to fish like? I can consume fish and there is a supplement that has D3 derived from fish oil, it's the last form I have left to try and I'm a bit hesitant to do so after my last topical application disaster even though I can eat fish like salmon in larger amounts without issues.

 

[bad1080]

after looking at some pictures i am not sure i don't have these winged scapula too. all my childhood people would tell me to "sit up straight", made fun of how my shoulder blades stuck out of my back or take my shoulders and bend them backwards to "straighten me out" (sometimes without warning).
i often have painful blockages with the ribs in my sternum (could also be due to an accident in which i broke 3 chest vertebrae but that was at 18y/o), sometimes i can loosen (pop) them myself and if not i go to my chiropractor. i don't know the pain in the armpit though (thankfully) so maybe i don't have a pinched nerve idk.

it's gotten better since i started doing a bit of yoga every day, but this could be an explanation why it never completely goes away. i'm going to ask the chiropractor about it next time, so thanks for that!