Zaher Nahle said:
In an article published recently in the Chronicle, our organization’s print publication, I discussed the many challenges facing the ME/CFS community and singled out members of the medical establishment who still wrongly attribute this serious and debilitating disease to psychosomatic factors.
Such a narrative—flawed to begin with—is outdated and intolerable in the era following the Institute of Medicine report, which defined ME/CFS as a complex pathophysiology. I also made the distinction between healthcare clinicians not properly informed about the disease and those informed, yet still ME/CFS deniers.
Granted, researchers often evolve in their thinking regarding complex medical dilemmas and that is at the core of any scientific pursuit. What we require in ME/CFS leadership are true believers who seek a defined pathophysiological root cause(s) for our disease. Any time the ME/CFS community struggles to build confidence in a researcher is in itself a clear indication that there is a troubling mismatch somewhere...
Such a narrative—flawed to begin with—is outdated and intolerable in the era following the Institute of Medicine report, which defined ME/CFS as a complex pathophysiology. I also made the distinction between healthcare clinicians not properly informed about the disease and those informed, yet still ME/CFS deniers.
Granted, researchers often evolve in their thinking regarding complex medical dilemmas and that is at the core of any scientific pursuit. What we require in ME/CFS leadership are true believers who seek a defined pathophysiological root cause(s) for our disease. Any time the ME/CFS community struggles to build confidence in a researcher is in itself a clear indication that there is a troubling mismatch somewhere...
Read more here:
http://solvecfs.org/March+2016+Letter+from+Dr.Zaher+Nahle