Healthwatch Trafford have released the findings of a major survey of people with ME/CFS to find out what their experiences of the NHS were like.
The report Tired of explaining : Experiences of services for ME/CFS patients in Trafford and Greater Manchester highlights the issues that people with the condition are finding and how that impacts upon them.
KEY FINDINGS INCLUDE
• More than a third of people in the UK diagnosed with ME/CFS get no information from the NHS (and 40% that did receive some information said it wasn’t useful)
• Less than 10% of respondents in Greater Manchester felt inpatient hospital facilities were suitable for them
• More than half in Greater Manchester said they wouldn’t trust their GP to provide them with information about the condition
• 37.5% of people across the UK waited more than two years for a diagnosis, with a quarter in Greater Manchester waiting more than five years
• 91.9% of respondents in Greater Manchester are unable to work or study because of their condition
• 77% have had ME/CFS for five years or more, with 34.7% having had it for 1over 15 years,
The report Tired of explaining : Experiences of services for ME/CFS patients in Trafford and Greater Manchester highlights the issues that people with the condition are finding and how that impacts upon them.
KEY FINDINGS INCLUDE
• More than a third of people in the UK diagnosed with ME/CFS get no information from the NHS (and 40% that did receive some information said it wasn’t useful)
• Less than 10% of respondents in Greater Manchester felt inpatient hospital facilities were suitable for them
• More than half in Greater Manchester said they wouldn’t trust their GP to provide them with information about the condition
• 37.5% of people across the UK waited more than two years for a diagnosis, with a quarter in Greater Manchester waiting more than five years
• 91.9% of respondents in Greater Manchester are unable to work or study because of their condition
• 77% have had ME/CFS for five years or more, with 34.7% having had it for 1over 15 years,