I just learned about a U.K. organization for Long Covid patients called "PostCovidSyndrome19.com".
https://www.postcovidsyndrome19.com/
What I find interesting about this organization is that the founder, Louise Barnes, sits on the UK NHS Taskforce for Long Covid, the NICE review Committees, and the NIHR. They are opposed to GET/CBT, fight efforts to psychologize Long Covid, and are aligned with the ME/CFS community.
If you're a Long Covid patient, they encourage you to join their Facebook group, where they organize informal trials of potential therapies:
https://www.facebook.com/groups/868936136917020
https://www.postcovidsyndrome19.com/
What I find interesting about this organization is that the founder, Louise Barnes, sits on the UK NHS Taskforce for Long Covid, the NICE review Committees, and the NIHR. They are opposed to GET/CBT, fight efforts to psychologize Long Covid, and are aligned with the ME/CFS community.
If you're a Long Covid patient, they encourage you to join their Facebook group, where they organize informal trials of potential therapies:
https://www.facebook.com/groups/868936136917020