.Sonia is saying that the ME/CFS International Alliance, which she says she instigated, is just an informal network/maight be a good idea/talking shop, sounds vague .....
But Sonia has already sent a letter to Dr Patricia Grady, Institute Director, National Institute of Nursing Research, letter by Sonya Chowdhury, CEO, Action for M.E.,
in the name of the M.E./CFS International Alliance, and listing the supposed membership Orgs ... a letter about about the Shorter lecture.
https://www.actionforme.org.uk/news/me/cfs-international-alliance-protests-shorter-lecture/
But Sonia was vague about the status of the supposed 'ME/CFS International Alliance'
Is the International Alliance a formal Org or not? One member, Jen Brea, says she has not formally signed up to such an alliance and was in the dark about being a member, and in hte dark about the letter sent in her organisations name (MEAction USA)
http://forums.phoenixrising.me/index.php?threads/new-org-me-cfs-international-alliance.47920/
.