justinreilly
Senior Member
- Messages
- 2,498
- Location
- NYC (& RI)
And getting to the "heart" of things... can the bereaved families of ME/CFS patients sue caregivers if they refused to provide cardiac care, while the patient was dying from virally-induced heart failure? Might risk of lawsuits be the nudge the health care system needs to start taking premature ME/CFS deaths seriously?
What you can do - "just in case"
Suffice it to say that I've given my spouse specific instructions to insist on a full autopsy, with info on competent labs to send PCR samples to, IF things go south. And I've also given my blessing that my family should go for the jugular legally, if this happens.
A post-mortem tissue bank for the ME/CFS community?
Even better however, might be if a leading institution were to begin a post-mortem tissue bank, and provide some kind of vehicle so patients can register in advance. Then, if they die prematurely, everything is set up to appropriately collect tissues for competent cause-of-death analysis.
Great ideas!