I sent a letter of appreciation to the CFSAC members. Wanda Jones mentioned that all correspondence is read. I have the sense that the more attention an issue receives, the more of a reaction happens further up the chain, more action, more funding.
My letter is very basic, but I got it in.
xxxxx
My letter is very basic, but I got it in.
Dear CFSAC Members
While I am a Canadian, I have ME/CFS, and what happens regarding this disease affects the rest of the world. Therefore, I watched as much of the webcast of the Oct 29, 30 2009 meeting as I could with extreme personal interest.
I would like to express my thanks to all the committee members for their participation on this committee. You are all heroes to me. Your expertise, hard work, passion and compassion, and often personal sacrifice astound me. In the rather Kafkaesque state of the science of ME/CFS in the US right now, the ME/CFS community is incredibly fortunate to have people of your caliber working for us in all of the ways you do.
Sincerely,
xxxx
While I am a Canadian, I have ME/CFS, and what happens regarding this disease affects the rest of the world. Therefore, I watched as much of the webcast of the Oct 29, 30 2009 meeting as I could with extreme personal interest.
I would like to express my thanks to all the committee members for their participation on this committee. You are all heroes to me. Your expertise, hard work, passion and compassion, and often personal sacrifice astound me. In the rather Kafkaesque state of the science of ME/CFS in the US right now, the ME/CFS community is incredibly fortunate to have people of your caliber working for us in all of the ways you do.
Sincerely,
xxxx