• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

LETTER, ME Myths, Sir P.Spencer, PACE. Reply, Dr J Greensmith, D. Hughes (23 Feb 2011


Senior Member
Re: ME Myths, LETTER from Sir Peter Spencer, PACE study; REPLY Dr John Greensmith; REPLY Deborah Hughes (Scotsman, 23 and 24 February 2010)

To read a letter from Sir Peter Spencer
click http://www.mefreeforall.org/index.php?id=2694#c10318

To read a letter from Dr John Greensmith
click http://www.mefreeforall.org/index.php?id=2694#c10319

To read a letter from Deborah Hughes
click http://www.mefreeforall.org/index.php?id=2694#c10320

Any letters in response should be sent to e-mail address

You may also wish to post the same or another comment below Sir Peter's letter and/or the original article about the PACE trial, bearing in mind that there may be a different readership for online and paper versions. The more of us who do, the better the chance of continued coverage.

Dr John H Greensmith
ME Free For All. org


Senior Member
Am I getting confused here. The PACE trial reported "CAN" not "MAY" when added to Specialist Medical Care. Seems a world of difference - the former being prescribed and the latter - could try out only. And Specialist Medical Care to which these may be "added to" is generally absent in the UK until such time as medicine here catches up with the wealth of international research and findings to better understand the underlying pathologies. The wording is most important the "CAN" in the hands of the ignorant (most here) could be forced on - as has been the history here. "MAY" is optional. (This is in response to ir Peter Spencer's letter).