Hello,
I have this very weird thing going on. About a year ago I had massive GI issues - slow motility, SIBO, insane belching (multiple hours a day). Because of this I ate very little and very light, mostly just rice and chicken, and every couple of weeks I had to just eat a very small amount of soup for a few days just because my motility was so slow. I dropped weight quickly during that period and bottomed out at around 58kg (I’m 1.83m/6ft). I looked like a skeleton.
The weird thing is: I had a lot of energy during that time. I was able to increase my steps during the spring, from about 1000 a day to 7000, without ever experiencing real PEM. Later on in the summer I could even ride my bicycle for up to half an hour. I just felt really energetic all around, even though I was still spending an hour a day in bed due to OI.
Now, a year later, in many aspects I have improved. My GI problems are gone and my OI is better, so I don’t have to lie down at all anymore during the day. Due to my GI problems being solved, I eat a lot nowadays, and varied as well. I gained weight, am now 70kg (so I gained 12kg compared to last year). I’m not really fat, 70 is normal for me. Also my belching is mostly gone, which means my ANS is much calmer.
I had a major relapse in October last year (I have one every October) and during winter I have a lot less energy than in the spring and summer so didn’t really try to increase my activities.
The weird thing is, in the past couple of months I have repeatedly tried to increase my activities, by trying very short walks, like around the house or in the street, but every time I get PEM, lactic acid and muscle paint. Last year I had none of that, I could increase my steps so rapidly, never PEM, even though I was eating far too little and basically only chicken and rice. All other factors are the same.
In a way it seems that the more I eat the less energy I have, or the more vulnerable to PEM I am. Is it because the GI process takes a lot of energy and I’m using that more now than a year ago? Does this sound familiar to anyone or does anyone have a clue what the reason for this could be?
The only other thing that could cause this is that I was diagnosed with iron deficiency a few months ago but I have been taking iron supplements every day for 2 months so that should be corrected by now I guess
I have this very weird thing going on. About a year ago I had massive GI issues - slow motility, SIBO, insane belching (multiple hours a day). Because of this I ate very little and very light, mostly just rice and chicken, and every couple of weeks I had to just eat a very small amount of soup for a few days just because my motility was so slow. I dropped weight quickly during that period and bottomed out at around 58kg (I’m 1.83m/6ft). I looked like a skeleton.
The weird thing is: I had a lot of energy during that time. I was able to increase my steps during the spring, from about 1000 a day to 7000, without ever experiencing real PEM. Later on in the summer I could even ride my bicycle for up to half an hour. I just felt really energetic all around, even though I was still spending an hour a day in bed due to OI.
Now, a year later, in many aspects I have improved. My GI problems are gone and my OI is better, so I don’t have to lie down at all anymore during the day. Due to my GI problems being solved, I eat a lot nowadays, and varied as well. I gained weight, am now 70kg (so I gained 12kg compared to last year). I’m not really fat, 70 is normal for me. Also my belching is mostly gone, which means my ANS is much calmer.
I had a major relapse in October last year (I have one every October) and during winter I have a lot less energy than in the spring and summer so didn’t really try to increase my activities.
The weird thing is, in the past couple of months I have repeatedly tried to increase my activities, by trying very short walks, like around the house or in the street, but every time I get PEM, lactic acid and muscle paint. Last year I had none of that, I could increase my steps so rapidly, never PEM, even though I was eating far too little and basically only chicken and rice. All other factors are the same.
In a way it seems that the more I eat the less energy I have, or the more vulnerable to PEM I am. Is it because the GI process takes a lot of energy and I’m using that more now than a year ago? Does this sound familiar to anyone or does anyone have a clue what the reason for this could be?
The only other thing that could cause this is that I was diagnosed with iron deficiency a few months ago but I have been taking iron supplements every day for 2 months so that should be corrected by now I guess
