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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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What are your thoughts on that? Is there a realistic chance that that might could help?
someone asked about laser therapy on the regenexx website comment section. someone from regenexx replied:
"Laser therapy would not be recommended, as the goal is to tighten lax ligaments and or heal injured ones, and Laser therapy has the opposite effect."
I am not sure why they would say this since lasers are used all the time to tighten skin and promote healing and stuff.... when i go to the clinic next week, i will ask the doctor about this. if i remember, that is...
Hello.If you are talking about low-level laser therapy (LLLT), which uses red or near infrared light, then as @Chris mentions, an LED unit will be just as effective and cheaper, as long as you get the right wavelength. 830 nm is probably the best, as it is the wavelength of infrared light than penetrates the deepest into the tissues. Whether it penetrates enough to reach the brainstem and ligaments of the craniocervical junction I am not sure.
@ScottTriGuy found such LED light therapy applied to his neck made a major improvement to his ME/CFS — see this post.
One thing that literally helped save me was class 4 laser. Class four is hot!!!! So not led red light therapy, IR or cold laser. It literally saved me.
@sb4 I guess so. Years ago, I looked at the parts to make a class 3/cold laser. I don't have the math skills and at the time there wasn't a YouTube selection on how to.@Hopeful2021 This machine you use, could it be partially replicated by using a class 4 laser pointer?
So you have 30 laser pointers and treatment lasts a couple of seconds at a time. Do you think shining a class 4 laser say on the torso for a minute, but moving it around, would very roughly simulate what is happening with your treatment?I don't know if you read my comments about light therapy and the champagne fountain. I definitely do not recommend using such a small beam (my class 4 has probably about 30 laser pointer beams at its widest setting and recommended distance from treatment site)
Looking forward to hearing what you try, what laser, your new regime, and results. Exciting that you are curious.@Hopeful2021 Okay I understand now, thanks.
It something I am considering maybe in the mid/near future. I have messed around with light therapy for a while, already have a ton of lights gavering dust in my room. It's like £60 for a class 4 laser so not bad. I will post somewhere here if I decide to try it.Looking forward to hearing what you try, what laser, your new regime, and results. Exciting that you are curious.
@sb4 I guess so. Years ago, I looked at the parts to make a class 3/cold laser. I don't have the math skills and at the time there wasn't a YouTube selection on how to.
the parts that focus light to a laser and the temperature are solid science. I will share that an acupuncturist used a small laser/ like a pointer on my neck and I was in a crash for 3-6 months. (I was bedridden for 2 weeks with only 1 trip to the potty with great difficulty getting there - 20 shuffle steps away).
I don't know if you read my comments about light therapy and the champagne fountain. I definitely do not recommend using such a small beam (my class 4 has probably about 30 laser pointer beams at its widest setting and recommended distance from treatment site)
Maybe maybe if I knew that I would not over do it, literally a fast 2 second count, maybe even a 1 second count.... and most importantly if I put the time in to fill up all those champagne fountain levels with other light devices like an IR bulb and red LED first. So at the end of three other layering sessions.... only , seriously ONLY then would I put a laser to try and invigorate the spots needed to bring some peace to the connective tissue, nerves, and muscles and brain patterns.
I would start with other body parts.... the arms for example and the lower legs. Neck and vestibular abilities get stability from many parts of the body, such as the feet and ankles.
Most brain trauma patients end up getting to see a podiatrist to assist them and it's really evident to pick out ppl with vestibular problems by just glancing at different patterns at work or in stuck mode in their body.
So again, me personally based on my ten years of neck instability and ME.... I would save the laser for the last 3 minutes of layered light therapy of at least 45min. And this 3 minutes would probably only include 15 seconds of laser broken into 2 seconds on specific areas and NOT on the neck until I have about 3 weeks of understanding how several things will respond.
Class 4 laser saved me and it is extremely powerful and often I was not able to move. I didn't understand how bad my brain was and after using class 4 laser, with all the extreme and beneficial physical changes I suspect that my brain couldn't handle re-processing so many new patterns. Or I didn't have a huge surplus of nutrients to help enable to brain to process all these patterns.... or indeed my brain was just continuing on a decline that it started.
I needed to be able to swallow.... water was a luxury. It was good I loved fasting because swallowing food was a challenge and keeping it down was a surprise. Involuntary vomiting was going to eventually put me on a feeding tube.
chewing and swallowing are still a game of roulette for me. I can't depend on my abilities, but I'm ridiculously better than I was then. And I don't mind missing a good steak if I think later in 2-3 days I can eat one.
I don't use class 4 on my neck anymore. I know how drastic the changes can be and that I can drive and walk now are two wonderful things I'm not willing to risk. I have other devices that are slower to get results but with the airway abd vagus nerve it is worthwhile and life preserving to be patient and go slow.
If you have a video on your phone, it's worthwhile to video yourself standing, sitting and laying down in different positions to see how your patterns change drastically. You will see it in your jaw or lips or eye movements or your neck muscles and likely you will feel it in your tongue and throat.
but do this a number of times so you know what parts and patterns you will be targeting. And then go with what you think will be safest and video after. It's like a moving Jenga game.... I'm often surprised and I'm still alive.
you and all those sensors in your body know what is safe and not safe. The Brain is constantly getting feedback about postural safety. It's not primarily about bones and disc space.
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**** have you read or listened to that book
The Brain's Way of Healing? It was my inspiration for finding many therapies to coax my brain and patterns to peace and stability now .... but it took hundreds of hours and consistency. And hundred of hours of being in extreme panic or fear. That is the part that I don't like to remember. I don't wish instability on anyone and I have a great deal of sympathy for those going through it. It is dreadful.... I often told family members and friends that I would go back to being bedridden and stuck looking up at the ceiling for what I was going through.
please keep asking me questions when they arise. I don't mean to be so stern in my tone, but I also don't want anyone to think laser is a easy and carefree solution.