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KDP Posted this and it needs to be undertaken

muffin

Senior Member
Messages
940
OK. Time to hit NIH Francis Collins and ask that NIH push CFIDS/XMRV to the front of the line given the deadly XMRV findings.

AGAIN - REMEMBER: Francis Collins WORKS FOR YOU. You are the taxpayer and Collins is paid by you. Don't be intimidated by these Federal pukes. Email them. Ask, tell, be gracious - but email them and keep emailing them. We MUST open our mouths or we will continue to get NOTHING.---------------------------------------------------------------------------------------------------------------
New Director of NIH Francis Collins videos priorities of NIH
From Facebook WPI: Please write Dr. Francis Collins of the NIH and ask him to fund important biomedical research into Neuroimmune Disease Research.

There's video or written testimony
http://energycommerce.house.gov/inde...rticle&id=2042

http://energycommerce.house.gov/inde...alth&Itemid=72

The Subcommittee on Health held a hearing entitled NIH in the 21st Century: The Director's Perspective on Tuesday, June 15, 2010, in room 2322 Rayburn House Office Building. The hearing examined the National Institutes of Healths research activities and priorities.

I watched this other introductory hearing: http://videocast.nih.gov/Summary.asp?File=15869

MECFS seems to fit right into his interests. He mentions Autism as a priority in both.

rare and neglected diseases
he was head of human genome project
drugs directed at gene mutations: Iressa drug for lung liver cancer depends EGFR gene mutation
pancreatic cancer need solution
TRND rare and neglected diseases
stem cells
finding pathogens in developing world
innovative new research areas
 

muffin

Senior Member
Messages
940
Dr Francis S Collins M.D., Ph.D. NIH Director francis.collins@nih.gov

http://www.nih.gov/about/director/index.htm

Collins, Francis OD Employee: francis.collins@nih.gov 301-496-2433

Legal Name: Dr Francis S Collins Preferred Name: Dr Francis Collins E-mail: francis.collins@nih.gov Location: Building 1 - Shannon Building, 126
1 Center Dr
Bethesda, MD Mail Stop: Phone: 301-496-2433 Fax: IC: OD (Office of the Director) Organization: OFC DIR (HNA) Classification: Employee
Francis S. Collins, M.D., Ph.D.
NIH Director
 

muffin

Senior Member
Messages
940
Secretary Kathleen Sebelius - DHHS (or shortened to HHS): Kathleen.Sebelius@hhs.gov
http://www.dhhs.gov/

Remember that DHHS is the "owner" of NIH, CDC, and the following Subordinate Organizations:
Administration for Children and Families
Administration on Aging
Agency for Healthcare Research and Quality
Agency for Toxic Substances and Disease Registry
Centers for Disease Control and Prevention
Centers for Medicare and Medicaid Services
Food and Drug Administration
Health Resources and Services Administration
Indian Health Service
National Institutes of Health
Program Support Center
Substance Abuse and Mental Health Services Administration


Secretary Kathleen Sebelius - DHHS: Kathleen.Sebelius@hhs.gov

Last name Sebelius First name Kathleen
Organization HHS/OS/IOS
Job title Secretary HHS Room 120F
Duty station Washington District of Columbia
Mail stop 200 Independence Ave. SW.
Internet e-mail Kathleen.Sebelius@hhs.gov
====================
http://www.hhs.gov/secretary/
Immediate Office of the Secretary
Acronym list......: HHS/OS/IOS
Phone................: 202-690-7000
Postal address.: 200 Independence Ave. S.W. Washington, D.C. 20201
Web site............: www.hhs.gov
 

muffin

Senior Member
Messages
940
Now go ahead and email both Dr. Collins and Secretary Sebelius.

REMEMBER: THEY WORK FOR YOU!