Ted Talks views up to 226,310! I plan to view everyday indefinitely.
Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!
- Thread starter JohnnyD
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From another thread (apologies for cross-posting):
I've just taken my own advice and posted a comment on Jen's TED talk about this - please upvote my comment to get it to the top:
http://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
I posted as "Sasha T". I don't seem to be able to link directly to it.
I've just taken my own advice and posted a comment on Jen's TED talk about this - please upvote my comment to get it to the top:
http://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
I posted as "Sasha T". I don't seem to be able to link directly to it.
It's there.
It could do with a few more accurate (ie ME/CFS sufferers) comments.
One I also question was this one (saying that a lot of CFS diagnosed people probably had Lyme).
"The huge symptoms difference in these TWO SEPERATE diseases: Lyme has joint pain. ME/CFS does not"
I get joint pain and I thought this(as well as muscle pain) was also quite 'common' symptom of ME??
It could do with a few more accurate (ie ME/CFS sufferers) comments.
One I also question was this one (saying that a lot of CFS diagnosed people probably had Lyme).
"The huge symptoms difference in these TWO SEPERATE diseases: Lyme has joint pain. ME/CFS does not"
I get joint pain and I thought this(as well as muscle pain) was also quite 'common' symptom of ME??
It's there.
Please help get it to the top to encourage people to donate to research!
I can't see it either, I wonder if it has fallen foul of somebody thinking it's spam of some sort.
I can't see it either, I wonder if it has fallen foul of somebody thinking it's spam of some sort.
Can't think of a way around this.
Last edited:
Perhaps so, because I included links to the two organisations.
I wish I'd kept a copy that I could have edited.
I wish I'd kept a copy that I could have edited.
http://www.ted.com/about/our-organization/contact-us
They may also be able to tell you what you need to edit.
TED talk views up to 292,647. Have another view and another and another. We need all the inspiration and hope we can get.
Up over 300,000 now...
Don't know about average views but from the TED site, select the option to view other videos, and a drop down menu will give you the option of most viewed. Spoiler, to get to number one, Jen just needs another 42 million views or so...
A couple of sites on TED numbers suggest about 1 billion total views and about 1,400 talks, which would work out at 714,285 per talk. but getting almost half-way there in a week seems like very good going.
@jimells has posted an excellent comment providing his explanation for the intentional neglect of ME over 30 years. Please "Upvote" on the TED website -- I have.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
This quote is interesting about Unrest from a good interview with Jen Brea on the TED site:
I had this sense that the clock had been ticking away my whole life. Everyone living in their moment always feels like they are on the cusp of change, yet little has changed. And if I just sit here and do nothing, there’s a good chance that 30 more years will go by, and we’ll be in exactly the same place. I felt I had to put all my chips on this and make a film that would break through the bubble of the way people perceive us. And so I thought, I’m not a Hollywood celebrity, but I have some resources, and I’m sick but I’m not nearly as ill as some people are. I can move my hands, I can go to the bathroom. That’s enough for me!
I also hope to convince more scientists that this is not only a really serious illness worthy of their attention — it can cause death in severe cases — but it’s also a fascinating puzzle. Doctors find mysterious illnesses annoying and hard to deal with, but scientists want to go to the frontier. And I think that’s where we are with ME. All the exciting stuff happening in science is where our disease lives. It’s about the non-human components of our body — our microbiomes — and the smallest parts — our DNA, and everything that’s intracellular: organelles, protein coding, epigenetics and mitochondria. Not only do you have these systemic biochemical changes that can affect what’s happening inside cells, but different systems speak to each other across systems in ways that we didn’t previously understand. It’s extremely fascinating. So I want to say to all those scientists: “Pack your wagon! Come out West.”
I had this sense that the clock had been ticking away my whole life. Everyone living in their moment always feels like they are on the cusp of change, yet little has changed. And if I just sit here and do nothing, there’s a good chance that 30 more years will go by, and we’ll be in exactly the same place. I felt I had to put all my chips on this and make a film that would break through the bubble of the way people perceive us. And so I thought, I’m not a Hollywood celebrity, but I have some resources, and I’m sick but I’m not nearly as ill as some people are. I can move my hands, I can go to the bathroom. That’s enough for me!
I also hope to convince more scientists that this is not only a really serious illness worthy of their attention — it can cause death in severe cases — but it’s also a fascinating puzzle. Doctors find mysterious illnesses annoying and hard to deal with, but scientists want to go to the frontier. And I think that’s where we are with ME. All the exciting stuff happening in science is where our disease lives. It’s about the non-human components of our body — our microbiomes — and the smallest parts — our DNA, and everything that’s intracellular: organelles, protein coding, epigenetics and mitochondria. Not only do you have these systemic biochemical changes that can affect what’s happening inside cells, but different systems speak to each other across systems in ways that we didn’t previously understand. It’s extremely fascinating. So I want to say to all those scientists: “Pack your wagon! Come out West.”
Great quote!
TED website: 332,486 views
Youtube: 91,364 views
Youtube: 91,364 views
Since Friday (3 1/2 days) ~130,000 more!
Total views 353,332
Please view everyday and share. Thank you!
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
Total views 353,332
Please view everyday and share. Thank you!
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose