IVIG treatment for Autoimmune Dysautonomia

[Hoosierfans]

A fellow IVIG patient who sees this doctor (Dr Jill Shofield in Denver) passed along this info to me. This is a FANTASTIC presentation on autoimmune driven Dysautonomia, and a well written paper that I, for one, am going to be sending to my insurance to help justify IVIG in my case.

https://sa1s3.patientpop.com/assets/docs/57649.pdf

 

[Zebra]

I came across clinical trial information I wanted to share, but not sure where to post it.

If you have medically diagnosed Autoimmune Small Fiber Neuropathy, there is a university here in the U.S. doing a clinical trial of IVIG for Autoimmune Small Fiber Neuropathy associated with FGFR3 and TS-HDS antibodies.

It appears this would take place in 2022-2023.

See website:

https://clinicaltrials.gov/ct2/show/NCT04153422