I would personally see Dysautonomia as a result of the ME/CFS progression (likely Vit B12 issues) and not the beginning of the etiology. This is my personal opinion though.
Did i have it all along or did i truley only get proper ME after the new virus? (given the claim that 90 percent of those with cfs/me have autonomic dysfuntion).
My first symptom was orthostatic intolerance. I don’t know if I have PEM or not, because I can physically strain myself and on the other day my symptoms are not exacerbated. I feel the same with or without exercise. The only thing that helps is lying down and avoiding high hr spikes. Sympathetic nervous system is overreacting on something like standing up, walking, emotional stress and other things.Neuroinflammation is my hot pick as new imaging is allowing us to see once what was not seeable and the recent EBV virus research across many diseases and other Post Viral Condition causing viruses that trigger immune dysfunction and inflammation.
I would personally see Dysautonomia as a result of the ME/CFS progression (likely Vit B12 issues) and not the beginning of the etiology. This is my personal opinion though.
I myself seem to have a different view point to many so take what I say with a pinch of salt.
everything is explained by ruined ANS.
My first symptom was orthostatic intolerance. I don’t know if I have PEM or not, because I can physically strain myself and on the other day my symptoms are not exacerbated. I feel the same with or without exercise. The only thing that helps is lying down and avoiding high hr spikes. Sympathetic nervous system is overreacting on something like standing up, walking, emotional stress and other things.
I don’t understand if it’s progressive or not in nature. Disease pattern is stable and if my sympathetic system is overdriven for too long, I get wired feeling.
I don’t see my disease as something medically unexplained and mysterious nonsense, because it’s obvious that if my SNS is always activated, I can’t feel myself like a normal person. Fatigue, wired feeling, heart pounding, sometimes dizzy, everything is explained by ruined ANS.
ANS is Autonomic Nervous Systemwhats ANS?
I think we vary in what we focus on. Everybody on a path...lead us to this shared experience but we seem to have all gotten here via various means.
So you've got a great grasp of all this sympathetic business which my brain entirely ignores. Thats just me, as I'm ignoring ALOT.
I"m barely surfing this ditty. The wave is big, and I could fall off soon.
I had this one degree fever the other afternoon/ plus PEM ridden.
Yesterday I stood up and sort of semi fainted. (thats not typical here)
I'm now without a BP cuff that works. I'm going backwards, when forward is the plan.
this week was: get something to happen.
Today is: Friday