I tend to agree with this. The MCAS and MCS came on immediately with the exercise intolerance and psych problems for me.
That said, I'm going to return to this thread later and elaborate but I have just started the DNRS program and I when I'm actively practicing, I have already seen improvement in my exercise intolerance. It shocked me. A friend asked me to help him build a shed and that should be murder for me. Plus it was in the cold.
I went anyway.
After 3 hours of constructing this in weather so cold it was forming ice crystals, I went home, took a shower and went to bed. The next day I felt heavy, muscle weakness and mild malaise. But not too bad. And it only lasted one day. That was it. I've been kind of perplexed since. I know there is something to this. However, it's hard. Emotionally. That's why I haven't been able to test this again yet- it takes some energy and courage to stay in the emotionally vulnerable place to experience the practice. I plan on trying another round this weekend
I do not have any sensitivities beyond exertion, although most people do, but that's why I asked. Since I wrote that post, I've been doing neural-retraining for 2.5 months and I'm 100% convinced this is
the explanation for ME/CFS (commence people chewing me out
). I am already starting to get better. I was taking the maximum dose of Tylenol per day for migraines, and now I'm doing 0-2 per day, most days 0.
Unfortunately, most people hear about neural retraining and think the message is "this is all in your head," (myself included, which is why it took so long for me to try it). This is
not the message in the slightest, ME/CFS is not "in your head" any more than a stroke is in one's head.
It's in the brain. And the brain is incredibly plastic. And this is incredibly great news because it means we can make a full or nearly-full recovery often
without expensive drugs, invasive treatments, or God-forbid surgery. (Although I do believe there are people who have CCI or related issues that get so bad they do need surgery, and most people will benefit greatly from or need drugs or treatments
alongside the brain training, especially the severe--I myself am doing this).
Aerose91, I'm so happy to hear about your improvements! I'll keep posting mine as well. By the way, I am a moderate-severe patient. At my worst I was bed-bound and needed to be spoon-fed. Going on 3 years with ME/CFS. Also have EDS and many other co-morbids. I also have spinal and brain abnormalities including scoliosis and Chiari.
If anyone is interested in more information, I'll post some good videos below to get started. There are many more options than just the DNRS program. (I'm doing Dan Neuffer's ANS Rewire, which is specifically for ME/CFS.)
I'm happy to answer any questions too! I'm spending all day everyday studying this stuff, and the information might as well go to use!
It's hard to find people explaining the actual nitty-gritty of what neural retraining exercises look like, so I'm happy to share that if anyone wants.
Dan Neuffer's Explanation for the Root cause of ME/CFS and Fibro (he recovered from moderate/severe himself with these techniques, Watch part I, II, and III):
One (of many) powerful testimonals from DNRS program:
Sharon Wachsler shares her testimony of complete recovery through neural retraining (most people do NOT recover this fast, but it happens quite often):
http://sharonwachsler.com/neuroplasticity/my-recovery-story/
