I had severe ME with sky high EBV antibody titers. Then after treatment with thyroid and stimulants I developed severe POTS. At that time I was diagnosed with Ehlers Danlos. I spent a year in bed. According to every specialist I saw, my situation was doom and gloom. But I had too much to live for to accept that. Besides, being a physician myself, I am well aware of how worthless doctors really are.
In truth, even those who call themselves specialist, only know parts of the truth. Once I began to approach this disease as a puzzle that had more than one answer, my recovery began to move forward with inxredible speed. After being very ill for ten years and essentialy bed bound for a year and a half, I am now able to handle hard core yoga work outs, 30 min swim sessions, long walks, and travel. I see the world the way I used to see it again. I am able to enjoy it again. For me, its truely been a miracle.
At this point, I still have some fine tuning to do to help me deal with anxiety and some procrastination as I am diving back into the full life after being out of business for ao long, but I plan to share my journey to recovery with all of those who are interested through a website I am going to create.
I wish there was a faster way to do it but unfortunately there isn't one because there is never going to be one simple answer as to what causes it. It's about creating a map to your body, brain and spirit and following it, both with knowledge and intuition. The good news is that there is definitely a way!
Stay tuned, my friends!
