I am not sure that my inability to exert comes from the blood pooling. That may have been caused by lack of blood damaging the brain perhaps. I am not sure about the symptom of inability to sustain muscle strength. I don't know if that could be attributed to blood pooling either.
Its interesting that Peter Rowe noted a connection with EDS/CFS/ POTS back in 1999.
Thanks Sandgroper (and every one for the interesting replies),
also there is the factor of constant adrenaline releases which I can only imagine woudl have dire consequences for muscles and maybe the rest of the body.
Would you have any reference for the Peter Rowe connnection please? I do not know his work.
As for the infectious element: I get constant infections but no swollen glands; the recorded cluster outbreaks of ME MAY turn out to be Lyme disease or something with similar symptoms? ( I see that quite a few ME people in Australia now are being re-diagnosed as having Lyme disease after diffferent testing parameters are used here.)
Quite a lot of people come down with (worse) ME symptoms after air flights and I wonder if tis could be due to some effect on the veins of prolonged episode of vasodilation - due to decreased air pressure and prolonged sitting - causing permanent or worsened damage to the veins?
Ulitmately I suppose a lot of us have different symptoms from each other and I guess - as someone else has pointed out - we may be talking about several different diseases that have yet to be classified as such. The EDS thing really resonates for me however, and I think the connection between being upright and subsequent symptom onset has not been mentioned much or fully investigated.
(Also I have a lot of hte other things that go with EDS - asthma, hay fever, varicose viens, history of migraines and a faint, family history and many family members who are Gorlin's sign positive.)
I would love it if more people could pay attention to the effect simply of upright position and see what happens; eg the horizontal postures in yoga that Tania mentioned .....did you travel upright to get to the class? Did you walk there? that could be the cause of the symptoms rather than the yogo poses?.
I have noticed that over the years I stopped using chairs at all at home - I had to use a recliner chair or couch.
I suppose with all other theories on ME the question is : why do we have hours and sometimes days when we are perfectly normal and totally symptom -free? And I think the EDS can account this whereas most other theories can't.
And yes in answer to question above I often wake up feeling lively about 3- 6 am (great !!!) and I am again more energetic in the evenings after about 6pm...if I have been lying down all day.