Is Apheresis an effective treatment for Long Covid and ME?

[SWAlexander]

"Dr. Pretorius explains (in about 11 Min) that most labs are testing the soluble portion but it’s the insoluble portion that contains the inflammation particles and micro clots."

"When patients why general tests do not show that there is an issue with coagulation.
Even the primary tests everything comes normal and people are concerned so but that's the answer is very simple the d-dimer the massive inflammatory molecule presence of von Willebrand are all trapped inside the micro clots that are the insoluble part of the plasma and most of these pathology tests look at the soluble part of the plasma. So the soluble part if you compare soluble with soluble you don't find differences and we also confirmed that there's no real you know…."

 

[godlovesatrier]

Would be worth me getting the microscope then. Expensive but I can monitor my blood at least.

 

[SWAlexander]

I can monitor my blood at least.

I monitor my blood (endless bloodtests) for the last 5 years. Still no help or treatment from doctors having F2 and F5. Now I´m aiming for solution - Apheresis. Hoping for a call from Dr. Jaeger.

 

[bensmith]

(Almost) on topic:

Asad has just sent this. I had to read it twice to believe it.

The following patients are excluded from NHS referral for medical support if they have Long Covid and one (or more) of the following: (!)

View attachment 45765

What the hell… why? This is really sad to hear. So was martin seen before they implemented this policy?

Any movement on getting this treatment in the us yet? I know officially no but still thought i’d ask.

 

[Martin aka paused||M.E.]

So was martin seen before they implemented this policy?

I don’t really understand the question… I’m in Germany… so I give a sh@€&t on what the NHS decides (if it’s not giving money to ME studies, that would be good)

 

[bensmith]

I thought this was help. But you are saying it’s only specific to british help?

 

[Martin aka paused||M.E.]

But you are saying it’s only specific to british help?

Every country is a sovereign.
So the NHS is a British authority and its decisions are not binding for e.g. German citizens because it is not a German authority, i.e. does not execute the laws of the German legislature as an executive, therefore does not serve the German people because it does not have any democratic legitimacy from them.

Imagine the decisions of the German Ministry of Health would be binding on the British. Doesn't really fit, does it?

 

[bensmith]

Bro i know that lol. I thought dr asad was german.

 

[Martin aka paused||M.E.]

Bro i know that lol. I thought dr asad was german.

Yes? Didn't look like it, but then I probably misunderstood your question somehow.

 

[bensmith]

So is dr asad british?

 

[Martin aka paused||M.E.]

So is dr asad british?

Yes, but he is in Germany atm

 

[bensmith]

Ok so he posted that he wont except severe me people anymore. I just thought you were lucky to get in before he made that stipulation.

Unless i am reading countrygirls post incorrectly.

 

[Martin aka paused||M.E.]

Ok so he posted that he wont except severe me people anymore. I just thought you were lucky to get in before he made that stipulation.

Unless i am reading countrygirls post incorrectly.

Ah, now I get it! I was confused bec you said NHS. Sorry

 

[bensmith]

Np! : )

Are you planning any more treatments? Any positives?

 

[Martin aka paused||M.E.]

Np! : )

Are you planning any more treatments? Any positives?

I would if Dr Jaeger would call me but she doesn’t… it’s very frustrating. The practice reminded her several times, Asad did several times… she always promises to call me but then she doesn’t. I know she has an enormous workload but that’s not good.

 

[perrier]

Ok so he posted that he wont except severe me people anymore. I just thought you were lucky to get in before he made that stipulation.

Unless i am reading countrygirls post incorrectly.

Ben, may I ask, what you are referring to? Dr. Khan is a patient, and it is Dr. Jaeger who accepts or doesn't patients. I wonder if you would consider clarifying where you read this info. Thanks so much. We are all at the edge of our seats eager for help.

 

[Martin aka paused||M.E.]

Dr. Khan is a patient, and it is Dr. Jaeger who accepts or doesn't patients.

Sorry, I think he refers to the apheresis team. That they won’t accept you for the list if you have severe ME

 

[perrier]

Sorry, I think he refers to the apheresis team. That they won’t accept you for the list if you have severe ME

Is this new then, Martin? A good number have put their name on the list.

 

[BrightCandle]

Just UK ME patients being treated as mentally ill people again as per usual. Nothing has changed. I didn't expect them to start adopting the treatment, I expect the UK to be the last country in the world to offer it and even while its curing people world wide our pyschologists will be publishing papers about how exercise and CBT solve everything about the disease.

We will basically have to go to Germany and pay privately, the NHS can't stop that from happening although Covid sure wont help and neither will the condition of the ME patients.

 

[Martin aka paused||M.E.]

Is this new then, Martin? A good number have put their name on the list.

I don’t know, I have to ask him