• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.

Intracranial Hypertension (IIH) causes in ME / CFS

Messages
14
I have 2 questions which I am not able to find answers
1. what are possible reasons of Intracranial hypertension IIH in ME / CFS ?
2 . Do IIH increases gets worst in cold climate .
 
Messages
58
Hey, intracranial hypertension can be caused by different things: CCI, AAI, Eagle's Syndrome or vascular insufficiency. The cause of vascular insufficiency is generally a stenosis of some intracranial vein or extracranial vein like the jugular veins. Here's an article about intracranial hypertension manifesting as ME/CFS and treated with venoplasty: https://www.researchgate.net/public...rome_and_idiopathic_intracranial_hypertension.
Have a look at the research articles of Dr Higgins for more insights: https://www.researchgate.net/project/IIH-chronic-fatigue-project.

In other cases the cause it's just unknown, but a trial of a drug like Diamox can be considered as pharmaceutical intervention: https://www.iih.org.uk/treatments