Interchange of symptoms

seamyb

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Sorry for making two posts in quick succession.

I'm not sure I have MCAS but I'm exploring the possibility that mast cell activation is at play with my symptoms.

Does anybody ever experience one set of symptoms, the CFS-type symptoms for example, generally, but then when an MCAS flare is triggered by some environmental or dietary thing, the CFS goes away while the MCAS symptoms take over? Like you either have CFS or MCAS, but never both at the same time. Or is it generally that your MCAS and CFS are one and the same.

Cheers!
 

hb8847

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I can only speak for myself but for me the two are intertwined - I have sort of "permanent" CFS, say 7/10, but when I get a really bad reaction to something I can go all the way up to a 10/10, if that makes sense. And it's very much not the case that the MCAS will displace my CFS; it makes it considerably worse.

And my reactions generally include symptoms that are very common with CFS (aching joints, cognitive issues, brain fog, heavy fatigue) and not all that much of the stuff that's generally associated with MCAS or allergies (hives, itching).