very similar hereDoing something I like has never boosted my energy levels or prevented crashing. Actually, it makes things worse
I traveled extensively when I was more mild, but I was also sick constantly because I continuously outpaced what I could do.
I was continuously crashed, despite TRYING to pace, for three months, while visiting The Funnest Place In the World.
It's a remarkable torture. Driven to the entrance of The National Park, I made it to the first embankment. Maybe I made it 400 feet away from The Parking Lot.
Is that it?
The odd thing about my version of ME includes- I was so happy to reach that embankment; it has provided me with several YEARS of enjoyment. (I took twenty pictures of rare ferns)
My life is so limited, that this tiny field trip was so WONDERFUL
Merely BEING at my daughters home: crashes me. I'm expected to speak and converse and have a cup of coffee, sit with others eating some breakfast. Just THAT gives us enuf to CRASH DAILY. Then, I had to walk further: 100 feet further. To get food, to get hot water for my hot water bottle. My lymph system improved from moving around, and I developed in tense POTS to replace it. Then it took me like a year to sort of return to that baseline place.