@Awags1986 I'm going through the Same thing. I'm talking too much about myself, but I have your situation in mind. You sound so much like me, but I'm 69, and have dealt with these issues almost 20 years. I think you're younger, which is to your advantage.
( Digression, but an idea..
.I just asked for a PT referral to the hospital PT. They know I'm to be treated like an MS patient and will do THEIR OWN evaluation. I'VE FOUND THEY CAN HELP WITH A DIAGNOSIS.
If they demonstrate muscle weakness OBJECTIVELY, that's a strike AGAINST the "hypochondriasis" theory.
A Physical Medicine Dr helped me in the past too, if you can find one. Sometimes called a Physiatrist. MUCH more understanding. He was sure I had Myasthenia Gravis, tested me, kept testing, till he retired... He gave me hope because he BELIEVED me, and talked to me on an intelligent level- never condescending or confrontational like everyone else was at the time. Plus, he understood exactly how I was being treated by other Drs and just shook his head- he told me that's why he got out of Family Practice- the attitudes toward Chronically Ill people .
Maybe you could get a referral for " being deconditioned" and take it from there.
BTW- none of the community PT places were helpful. The hospital PTs who see Chronically Ill people understand)
All the good Drs have left or retired in my home state that I had to return to ( no money left to live on my own out West, with better Drs everywhere).
The only " functional medicine" Drs are wacky, or are overly focused on one treatment- usually something outdated that the Drs and NDs stopped doing 18 years ago in WA/OR/CA...
I think Drs in my state know they can get away with inferior care, labeling patients inaccurately, etc because THE PEOPLE LEFT Here ARE UNEDUCATED.
So...I know what you mean.
( I've been wondering if we're in the same area by your posts !)
I've had 5 PCPs since August... Not my choice- thiers. You'd think CFS was a complicated, rare illness.
( Some have told me my case is " too complicated")
So, I empathize.
Please ... don't continue with a Dr who BELIEVES you have a psychosomatic problem. IT'S NO DIFFERENT THAN BEING MARRIED TO AN ABUSIVE SPOUSE- Don't Stay because you have no options.
Look for a way out, just as you would a bad relationship.
If you keep seeing a Dismissive provider, YOU WILL GET DEPRESSED AND LOSE HOPE.
Please keep looking.
Google " functional medicine doctors in my area"- you might find one.
Unfortunately, I can't find anyone.
I'm being thrown back to the kind of thinking I encountered 18 years ago when I first got sick.
I haven't been " labeled" since 2009.
It's a big shock to feel I've gone backwards.
It's a fight not to have PTSD-type anxiety and fall apart with disbelief and frustration EVERY time I see a Dr now.
I GOT AWAY FROM MEDICAL ABUSE, TO PLACES WHERE I WAS BELIEVED.
I DO NOT WANT TO GO BACK!!
The MAs are even hostile. They tell me " no one complains as much but as you and is on these needs" ( I want to ask where they got a Medical Degree...)
I'm telling confrontational office people, that " people like me" are most likely stuck in bed somewhere and never leave the house; THAT'S why THEY'VE NEVER SEEN THEM.
My housing is insecure. I live with a relative who isn't happy about it. The snow is very deep, it's extremely cold- being homeless in a tent here is not an option.
The hospital signed me up for MEDICAID, ( without me knowing) because I've gone 8 years without insurance in other states.
It has made things WORSE. No educated women are in Medicaid, unless they are psychotic.
The trade off if staying in a state where the regular Drs are undereducated; and no good private Drs can make a living, so there are none.
The CDC has even changed the explanation of CFS! I guess no one here is reading the info. It's appalling, truly.
I think I'd get better care in Mexico.
I was hoping you lived in a state like Oregon...
Please get away from psychologically abusive Drs.
That's what it is.
It's no different than the Sociopathic Dr I was married to.