NilaJones
Senior Member
- Messages
- 648
Hello folks . It has been a long time
! I now have quite severe lung damage from covid in 2020. Am on inhaled steroids, and supplemental oxygen.
I decided to give oral cromolyn another try and I'm absolutely amazed to find it helps my lungs!
Ramping up, the lung improvement started when I got to 100 mg twice a day
But that level also gave me terrible insomnia. Even with sleep meds, I couldn't sleep more than about 5 hours a night, so I had to back the dose down.
Taking cromolyn near bedtime makes the insomnia much worse. I have to make sure I don't take it within 10 hours of bedtime.
Do any of you smart people have an idea why this might be causing insomnia? I gather it's a rare side effect? Maybe if I understood the mechanism I could figure out what to do about it.
In case it's relevant, many, many common ME/CFS meds and supplements give me insomnia. Glutathione, B12 at more than 1 icrogram per day, folate, most of the b vitamins, NAC, CQ, etc.. My solution is generally not to take them, or to take very small doses
. But, given the benefit to my lungs, I 'm motivated to try to figure out how to make this one work.
I'm grateful for any advice or tips!
! I now have quite severe lung damage from covid in 2020. Am on inhaled steroids, and supplemental oxygen.
I decided to give oral cromolyn another try and I'm absolutely amazed to find it helps my lungs!
Ramping up, the lung improvement started when I got to 100 mg twice a day
But that level also gave me terrible insomnia. Even with sleep meds, I couldn't sleep more than about 5 hours a night, so I had to back the dose down.
Taking cromolyn near bedtime makes the insomnia much worse. I have to make sure I don't take it within 10 hours of bedtime.
Do any of you smart people have an idea why this might be causing insomnia? I gather it's a rare side effect? Maybe if I understood the mechanism I could figure out what to do about it.
In case it's relevant, many, many common ME/CFS meds and supplements give me insomnia. Glutathione, B12 at more than 1 icrogram per day, folate, most of the b vitamins, NAC, CQ, etc.. My solution is generally not to take them, or to take very small doses
. But, given the benefit to my lungs, I 'm motivated to try to figure out how to make this one work.
I'm grateful for any advice or tips!