sometexan84
Senior Member
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So no CVB then? Did you test for Echovirus as well?I did and there were ZIP across the board for Coxsackie virus interestingly enough
Can I ask what your HHV-6 and EBV titers were?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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So no CVB then? Did you test for Echovirus as well?I did and there were ZIP across the board for Coxsackie virus interestingly enough
So no CVB then? Did you test for Echovirus as well?
Can I ask what your HHV-6 and EBV titers were?
EBV is not one number. The viral titers are a set of numbers that are usually interpreted incorrectly. A PCR test maybe useful in finding it if titers do not. It might also be wise to see if your immune system is working properly, and is creating antibody titers correctly. Mine wasn't, and my EBV got missed for a long time, spawning two different autoimmune problems that have caused all kinds of havoc.
For me it is.EBV is not one number
Unfortunately there is no evidence that your treatment protocol will treat your ME/CFS. If anti-virals "work" for you, then it is by a different mechanism than killing viruses. This was pointed out by Naviaux--you can search this forum or his website for this mechanism. Typically antivirals will work for a while and then stop working.
About the only thing that there is some evidence for treating ME/CFS is cyclophosphamide (phase II) https://forums.phoenixrising.me/thr...ase-ii-study-rekeland-fluge-mella-2020.80066/