Well the more I read about it the more it sounds like ME. hello?
"Mastocytosis, MCAS and IA, negatively impact working and personal lives. Many of these patients
have a restricted diet of very few foods they can safely eat, constant fatigue, episodes of vertigo and
anaphylaxis, as well as inability to exercise on a regular basis (includes walking) due to fatigue and
weakness and all the other symptoms. On a daily basis, many patients experience difficulty with tasks
requiring concentration, learning, retention or anything relying on memory or information processing
skills. Many people suffering with these rare disorders cannot commit to anything in terms of a
schedule or regular routine because their symptoms vary in type and severity from day to day and
often hour to hour. They are continuously symptomatic with disabling effects such as fatigue, sudden
unexplained episodes of drops in blood pressure (very common), anaphylaxis and anaphylactoid
reactions, flushing, shaking & tremors, and poor concentration.
Triggers can be anything which causes mast cells to degranulate. This includes
hormonal activity, emotions (positive or negative), physical activities, positive/negative stress, foods
and drinks, temperature, and exercise/exertion of any kind. It is only by controlling their exposure to
triggers in addition to taking medications, that they can achieve some relief from the symptoms, but it
is not total relief and this does not return them to functioning normally on a consistent and reliable
basis. Their good days are very few and far between, rarely even lasting a full day. Most of the
patients share this same experience."