In the hospital in nyc having bad flair post surgery. Need help , including in person help

[frozenborderline]

Please help me. Do have one caregiver but caregiver is chronically I'll too. Hardest recovery I've ever done. I'm too in pain and sick to look at phone screen much or research but there are some things I need help with that doctors aren't going to figure out. So can someone please help me , in person or in some other way. If u are a moderately I'll person or ally in nyc area this is a way u could help. Desperate. Time sensitivity

 

[frozenborderline]

Cci surgery

 

[bensmith]

So sorry man i’ve been thinking about you, i hope
You get some care.

 

[Rufous McKinney]

I'm so sorry your alone and need help and things must be very difficult right now for you.

This is the hard part, so you can feel better- so its just tough post surgery, I cannot even imagine it, in our state of affairs.

Your very brave- so know that!

Will try to see what we can do to find you some help.......

 

[L'engle]

I hope somebody can help you. Brave of you to go through with the surgery.

 

[Judee]

Could you see if your insurance will allow you to hire a patient advocate?

The bottom of the main page of this website say the advocates charge a fee but when I go under the tools area (link below) the 3rd topic down is "Free or Low Cost Help."

https://advoconnection.com/tools-to-help-you-improve-your-care-and-outcomes/

 

[5vforest]

Can you ask to see the hospital social worker, and see if they are able to assist with any of your needs? That might be the most immediate help I can think of.

 

[Sophiedw]

Sorry I can not help, in England. Anything I can do tho I will x

 

[Sophiedw]

I can do some research if you can tell what your main symptoms are at the moment

 

[Sophiedw]

Doctors are cowboys

 

[Sophiedw]

Cci surgery

I really hope this helps

 

[Sophiedw]

I’m sure it probably won’t be of help here but I’ve found malic acid to be helping me a lot recently. I’ve gone from bed bound to out the house. On @aaron_c ‘s research

 

[Rufous McKinney]

Wanted to
B UMP this thread so we can continue to try to find help for FB..........

 

[Zebra]

This person, see below, expressed interest in connecting with fellow ME/CFS suffers in NYC, including a generous offer of in-person help.

https://forums.phoenixrising.me/threads/looking-to-connect-with-people-near-nyc.84619/

 

[Rufous McKinney]

This person, see below,

I tried to send a direct message to @checkmate but it reported back I can't message the person.....

 

[Sushi]

Can you ask to see the hospital social worker, and see if they are able to assist with any of your needs? That might be the most immediate help I can think of.

A hospital chaplain might also be able to help. They are on the staff and their role is to assist patients with whatever they need.

 

[Jyoti]

I tried to send a direct message to @checkmate but it reported back I can't message the person.....

He is a relatively new member, but I just added full membership privileges for him--you can PM him now, @Rufous McKinney. If you have trouble again, please PM me and I will get it straightened out.

Edited to add: since this situation is urgent, I went ahead and contacted @checkmate. Thanks for remembering them, @Zebra, and for trying to reach them @Rufous McKinney.