Hi! Im very severe, 100% bedridden and getting worse because ive been scared, ignorant to how long ive actually been in a crash and have brrn over talking being on the phone. I never just relax into this crash. The symptoms are so horrific i induce adrenaline to come out. Vicious cycle. Im so scared. Ive read death stories, staying the same way til suicide. I was normally functioning 15 months ago while pregnant. I think ive been having cfs 8 years but drs kept telling me anxiety and plus i was functioning normally which i recall weird times but was so far and between and mild. Fast forward to pregnancy, weird symptoms began. Now gere i am 100% bedridden in 15 months and constantly over exerting daily mentally and physically in bed being on phone. Im running on adrenaline but when it goes omg! The symotoms are horrific!! Im so freakin scared. Brain burning, so foggy thoughts, now facial muscle weakness, cant chew, blurred strained eyes, of course fatigue and muscle weakness. My nostrils and chest wall muscles are weak. I can not be around people, noise, or light! I have a husband and kids omg! Please excuse typos. No energy to edit. So scared ill die stay this way forever til i have no choice. Rolling pem is probably permanent now. Can anyone please tell me they know someone similar that at least improved? It hurts me i was disgnosed so late and then just learning that ive been pushing. Are there things i can take along with agressive rest therapy to pull me out some.ive read the pem busters but anyone know of this severity besides abilify that can give me some fast relief? I know no cure just relief .