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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Im sure this has been posted here before but reading it makes me feel less alone and scared

jesse's mom

Senior Member
Messages
6,795
Location
Alabama USA
Thanks for posting especially this part of the article.
Others
  • I don't feel human
  • It feels like I am walking on bone.
  • I felt like an elderly person when I hadn't even been eligible for my drivers license yet.
  • The pain causes me to go some where else in my brain...
  • searing, broadcasting pain in all mucous membranes
  • weird painful flushing feeling mostly in head and upper body (fluey sensations)
  • buzzing (like my whole body is buzzing or vibrating)
  • crawling sensations
  • waddling like a duck
  • internal tremor: like a car idling or like feeling the electricity go through the cord while the vacuum is on.
  • I feel poisoned. I feel like an alien infection has taken over my body
  • like little bugs are taking little tiny bites into my nerves and muscle fibers
  • My bones are vibrating
  • Electricity is running through my feet.
  • I just got hit by lightning.
  • a feeling that everything is inflamed and sort of throbbing and tingly but numb all at once, including my thoughts