- Messages
- 4,404
- Likes
- 5,012
I did have a very normal, non controversial. CDC positive lyme case at the BEGINNING of my case , but after taking some subsequent rounds of antibiotics and also reading literature I came to the conclusion that the lyme wasnt the root issue and wasnt likely chronic but rather triggered disease.
I've also mapped out a lot of my personal idiosyncratic health issues and comorbidities that also overlap with many me/cfs patients , and turned it into a novel model of me/cfs etiology. And I never thought 5hat a single anecdote would derail my ideas and have me doubting what I and the expert doctors around me thought was right, until I sort of started to get hypnotized, in a dreadful, dark way, with this evangelist of lyme cures.
Later I can post 5he text of our messages. I dont necessarily believe he's correct
And I'm not sure whether this should be in here or in emotional support
I've always said theology is more intertwined with science than people think. Not in a cheesy new agey, way, but in a way that one tries to map the whole world and its laws and properties and what moves it. what caused sickness and health used to be considered a "spiritual" matter. I'm no mind body-ist, I just mean this to mean that different ideological schemas are competing for the same set of facts. A psychiatrist fills the role a shaman would fill in a premodern society, perhaps. Or they could just overlap without one deciding which is correct.
But yeah, I'll have to elaborate more to get more precise feedback, I'm a bit perturbed/derealized rn. normally I tend to want to be disproved scientifically bc I think I'm getting closer to the truth, and every time I'm disproven I am closer to the empirical facts and a cure.
Sometimes someone comes along with a. Theory they are so confident in, based on their experience, that it does seem like it could not just adjust but break my models of what this disease is. It wouldn't necessarily bother me if it was about disillusionment with my lost years searching for s cure and then getting a different one, and the sense of waste, if it 2was also a sure bet. But no , it's just another biohacker,but this one seems to think in evangelical terms about their discovery. He is sure that he knows far more than me just through his short course of treatment for lyme, that finally worked.
I've heard similar stories before, and put them off to the anti inflammatory effects of some antibiotics , or maybe some people having some dysbiosis . But I never saw someone with this fervor that he was correct before.
I've also mapped out a lot of my personal idiosyncratic health issues and comorbidities that also overlap with many me/cfs patients , and turned it into a novel model of me/cfs etiology. And I never thought 5hat a single anecdote would derail my ideas and have me doubting what I and the expert doctors around me thought was right, until I sort of started to get hypnotized, in a dreadful, dark way, with this evangelist of lyme cures.
Later I can post 5he text of our messages. I dont necessarily believe he's correct
And I'm not sure whether this should be in here or in emotional support
I've always said theology is more intertwined with science than people think. Not in a cheesy new agey, way, but in a way that one tries to map the whole world and its laws and properties and what moves it. what caused sickness and health used to be considered a "spiritual" matter. I'm no mind body-ist, I just mean this to mean that different ideological schemas are competing for the same set of facts. A psychiatrist fills the role a shaman would fill in a premodern society, perhaps. Or they could just overlap without one deciding which is correct.
But yeah, I'll have to elaborate more to get more precise feedback, I'm a bit perturbed/derealized rn. normally I tend to want to be disproved scientifically bc I think I'm getting closer to the truth, and every time I'm disproven I am closer to the empirical facts and a cure.
Sometimes someone comes along with a. Theory they are so confident in, based on their experience, that it does seem like it could not just adjust but break my models of what this disease is. It wouldn't necessarily bother me if it was about disillusionment with my lost years searching for s cure and then getting a different one, and the sense of waste, if it 2was also a sure bet. But no , it's just another biohacker,but this one seems to think in evangelical terms about their discovery. He is sure that he knows far more than me just through his short course of treatment for lyme, that finally worked.
I've heard similar stories before, and put them off to the anti inflammatory effects of some antibiotics , or maybe some people having some dysbiosis . But I never saw someone with this fervor that he was correct before.