ME/CFS Weekly Phone Support Group
Saturdays at 8pm EST
U.S. Dial-In: (712) 770-4700; Access Code: 915110#
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OVERVIEW:
This is a peer-to-peer support group for people affected by myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). The aim of this group call is to provide support and social interactions to those affected by ME/CFS. Listen to and share experiences with others who understand from the comfort of your own bed. Most participants have ME/CFS, but family & friends are very welcome to join, so we can all benefit from sharing different perspectives and information.
Topics vary each call, based on what participants want to talk about during that call. Discussions can cover a wide range of matters, including symptoms, socializing, research, treatments, diet, the isolation and stigma of this disease and advocacy efforts. A typical call runs 1-1.5 hours, but you can join for a shorter period.
Click on the “EVENTS” section of this group to RSVP for a call. If you RSVP, that call will be added to your Facebook calendar as a helpful reminder. You can still join the call without an RSVP.
Please be respectful of others’ opinions and journeys. No solicitation for any business or product will be tolerated, as this is for social support only.
If you have any questions, feel free to contact the group's admins through the “MEMBERS” section of this group or e-mail the admins at
MECFSPhoneGroup@gmail.com.
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INSTRUCTIONS FOR JOINING:
U.S. Dial-In Number: (712) 770-4700
Enter Access Code: 915110 followed by # sign.
TIP: Add a “one-click” quick dial to your mobile phone’s contacts or calendar reminder for easier dialing.
Most Devices: 7127704700,915110#
Participants outside of the U.S. can join a call by (i) downloading the "Free Conference Call" application to connect via the Internet or (ii) contacting the group's admins to see if a local in-country dial-in number is available. For information on the app, go to
https://www.freeconferencecall.com/apps.
IMPORTANT: Please keep your phone on mute during a call when not talking, or make sure there is minimal background noise. Background noise can disrupt a call, and many people with ME/CFS are sensitive to sounds. Using or placing your mobile device too close to a computer or speakerphone during a call can cause static or echoing. If you are using the “Free Conference Call” app or a different program to dial-in (e.g., Skype, Google Voice), please use a headset or earphones with a mic. Using speakerphone can also create static and echoing.
