I have this hope for making a healing center for ME/CFS

[jesse's mom]

So far this feels like a wouldn't it be great idea that I have.

Wouldn't it be great if we had a retreat place where ME/CFS patients could go for a change of scenery?

Maybe someplace near a river where it is warm, but not too hot

We could have alternative healers, meditation classes, walking a little in nature mindfully, physical therapists that could teach gentle stretching, caregiver support information, teaching boundaries, and speaking up for what you need, like nonviolent communication... I have a million ideas! All the classes would need to be very short and all just go to a class if you are interested.
Classes on different nutrition, supplementing, acupuncture, all of the ways that we are seeing results in the alternative. Art therapy! Strategies on boredom! Again at your own pace.

There would have to be beds and recliners everywhere, and private rooms with proper window coverings and soft cotton... We could serve meals in the room, or have a simple coffee shop with meals if people want to mingle some.

This is just a pipe dream, but I like to put my dreams out there.. Sometimes they manifest!

Yes, we need funding. Most of us (including me) could not afford to do it. Maybe if the scientists wanted to study us there we could be easily accessible for testing. Think of the information they could gather on our illness!

Thanks for reading, Namaste

 

[Raven Mom]

This is just a pipe dream, but I like to put my dreams out there.. Sometimes they manifest!

Yes, we need funding. Most of us (including me) could not afford to do it. Maybe if the scientists wanted to study us there we could be easily accessible for testing. Think of the information they could gather on our illness!

Thanks for reading, Namaste

pure inspired brilliance!
from your lips to god's ear

 

[jesse's mom]

Thank you so much @Raven Mom . If you have some dreams to add to this dream... Add away!
I would really like hearing other ideas. I can lay here and put the retreat/study center together in my heart and mind.

I posted this in the spirituality forum to give people room to dream!

I would love to do @Wayne 's OM meditation in the mornings with others! So powerful in a group!

 

[joanierav]

i think there was something similar to this, upstate around albany many yrs ago. but it was more of a resting place to come and recuperate. i was looking into this, but think it was a bit too expensive for me. i often think why we dont have something like this to escape to.

joanie

 

[joanierav]

sorry i left the word new york out. upstate new york, near albany.

joanie

 

[keenly]

So far this feels like a wouldn't it be great idea that I have.

Wouldn't it be great if we had a retreat place where ME/CFS patients could go for a change of scenery?

Maybe someplace near a river where it is warm, but not too hot

We could have alternative healers, meditation classes, walking a little in nature mindfully, physical therapists that could teach gentle stretching, caregiver support information, teaching boundaries, and speaking up for what you need, like nonviolent communication... I have a million ideas! All the classes would need to be very short and all just go to a class if you are interested.
Classes on different nutrition, supplementing, acupuncture, all of the ways that we are seeing results in the alternative. Art therapy! Strategies on boredom! Again at your own pace.

There would have to be beds and recliners everywhere, and private rooms with proper window coverings and soft cotton... We could serve meals in the room, or have a simple coffee shop with meals if people want to mingle some.

This is just a pipe dream, but I like to put my dreams out there.. Sometimes they manifest!

Yes, we need funding. Most of us (including me) could not afford to do it. Maybe if the scientists wanted to study us there we could be easily accessible for testing. Think of the information they could gather on our illness!

Thanks for reading, Namaste

Yes indeed. DREAM IT INTO REALITY. GOD BLESS.

 

[jesse's mom]

upstate new york, near albany.

That is a very expensive area!

I am thinking we could use a place that land is cheaper. I can't afford it either!

 

[Cheesus]

I wouldn't want to call it a healing centre, as I think that could give people the false impression that you can heal them. Perhaps call it an ME/CFS Retreat instead? You could maybe bundle in other conditions like MS too.

 

[jesse's mom]

keep up the ideas I love it!

 

[Rebeccare]

Didn't the word 'sanitarium' mean a place where people who were ill could go to convalesce and just relax in nature? Or was that sanitorium??

I'd like to schedule my visit now, please...

By the way, I've seen you mention the OM meditation a few times. Could you please point me in its direction??

 

[Ineedausername]

Love this! I've actually tried looking on line for it in the UK (and obviously found nothing). Also looked for a holiday rental suitable ie the promise of no perfumes, air purifier, flexible or late check out times, a welcome basket that my mum can actually use that sort of thing.

My dream is not as adventurous... I want to do a meals on wheels service for ME/MAST CELL/FODmap. As the loved one of a patient I worry a lot that other CFers don't have someone to cook for them or relatives that understand the diet needs... it bugs me genuinely!

 

[jesse's mom]

@Ineedausername , I actually worry about caregivers also! It has been a real learning experience at my house! I would love the Centre to include the loved ones and have education for them to do self care and I think the communication part is so vital.

Some are taking care of people who have no speech! Imagine!

As long as this is based on love and learning to live a new normal it excites me so much!

 

[toyfoof]

I love this! Healthy meals with classes on how to create simple, basic, healthy foods without too much energy.

A place for our pets to rest with us, or hike around with our caregivers or those of us well enough for some walking.

Photography, painting, and drawing supplies. Coloring books.

Eye masks and ear plugs.

 

[Ineedausername]

@jesse's mom aww I love those ideas. There's no template on how to do this so teaching everyone the skills to how to navigate the terrain is perfect.

 

[jesse's mom]

Thanks for chiming in @toyfoof ! Keep those ideas coming!
I am not sure my service cat would enjoy it though!

 

[jesse's mom]

If some of the scientists would study us in that setting we could just go get an MRI or they could send phlebotomists to our rooms and we would not have to travel for blood work then suffer as much! Just think!

Just dreaming of this makes me happy!

There are some beautiful places in Arkansas, and the all the southern mountain ranges Tennessee, Even parts of Georgia, that are warm, and have airports that are easy to travel through. Much cheaper land than the Ozarks and cooler than Florida. I am thinking low cost land and easy less stress travel.

I am a southern girl and we don't have to stop for winter. Just miserable in July and August.

 

[Shoshana]

Sign me up for art therapy, and one of the beds....
and don't rush me to leave, once I get there!

Sounds great, @jesse's mom

It makes me feel good, even dreaming about it and visualizing it.

 

[Shoshana]

Teach caregivers, what to say, and what NOT to say?

 

[jesse's mom]

@Shoshana , you can relocate there if you ever want to. Permanent staff, position, love and communication coach! Extremely part time. Just whenever you feel like it!

There is your job, educating carers in nonviolent communication!

 

[jesse's mom]

@RebeccaRe this comes from @Wayne 's signature
http://www.miraclesinyourlife.org/